Category The Hopkins Centre Show all
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Disability Action Week: Sleep and Spinal Cord Injury: What You Need to Know

Good sleep is vital for health and wellbeing—yet research shows that two in three people living with a spinal cord injury (SCI) experience poor sleep, and most haven’t sought support.
As part of Disability Action Week, we’re highlighting important work led by Dr Emily Bray and her team at The Hopkins Centre, who have partnered with clinicians, researchers, and people with lived experience to explore this issue and bridge the information gap.
Together, they’ve co-developed new, evidence-based resources to help people with SCI better understand sleep changes and find strategies that work for them.
View the graphics below to learn more about this important research and how it supports the SCI community.
We would like to thank our partners Spinal Life Australia, Institute for Breathing and Sleep and the Queensland Spinal Cord Injuries Service (QSCIS) for their support.
Contact Dr Emily Bray for more information:
https://www.hopkinscentre.edu.au/people-view/emily-bray-177Visit our website to find out more: https://www.hopkinscentre.edu.au/project/seed-project-sleep-disturbances-following-spinal-163







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Help Make National Parks Accessible
Your voice can help shape more inclusive and accessible parks across Australia.
Did you know that while 1 in 5 Australians live with disability, fewer than 1 in 10 visit national parks?
Public green spaces should be for everyone - But accessibility barriers often make them out of reach.
Dr Michael Norwood and his team are conducting vital research to understand these challenges and improve access to nature for all Australians.
If you have a disability or support someone who does, your experience could help make Australia's national parks and green space more accessible for everyone.
WE WANT TO HEAR FROM YOU!
Take part in our National Park and Greenspace Accessibility Survey to share your experiences and ideas for change.
Participation will involve completing an online survey which will explore if you visited a national park as someone with a disability, as a support person or significant other of someone with a disability.
Scan the QR code on the flyer or click here to take part: https://inclusivefutures.griffith.edu.au/national-parks-study
Ethics approval number: Griffith University ref no: 2025/033
MORE INFORMATION
Dr Michael Norwood
BEEHive Research Team
hopkinscentre@griffith.edu.au
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Two New Ways to Support Wellbeing After Spinal Cord Injury
Dr Marita Heck, Adjunct Research Fellow at The Hopkins Centre, has two exciting new contributions aimed at enhancing the lives of people living with spinal cord injury (SCI)—from evidence-based research to practical guidance on intimacy and pleasure.
1. New insights into sexual rehabilitation support after spinal cord injury
In “Sexual rehabilitation support experiences of Australian adults living with a spinal cord injury” (Allen, Heck, Doig, Cudmore, Lawrence & Mason, 2025), the team explored the lived experiences of nine Australian adults (8 men; 1 woman) with spinal cord injury (SCI). Guided by Material–Discursive–Intrapsychic Theory, the study revealed how physical functioning, relational identity and broader disability-stigma discourses combine to shape sexual quality of life after SCI.
Key findings:
- Rehabilitation tends to focus strongly on physical function (e.g., erection, ejaculation) while giving less attention to emotional, relational and identity-aspects of sexuality.
- Participants described loss of autonomy, feelings of shame or stigma, and challenges in partner communication / relational connection as major influences on sexual wellbeing.
- When sexual rehabilitation support attends to emotional connection, personalised equipment and partner-/relationship-oriented goals, outcomes for sexual wellbeing improve.
Why it matters:
- Because sexuality is a fundamental component of wellbeing, addressing it in rehabilitation is critical — yet often under-addressed for people with SCI.
- By broadening support beyond just “physical functioning” to include relational, psychological and identity dimensions, clinicians and services can help people living with SCI experience fuller, more meaningful sexual lives.
Practical tip:
If you work in rehabilitation (or support someone who does), embed a simple “relationship check-in” into the routine: ask “How has your /intimacy /connection changed since the injury?” and then include a follow-up question “What aspect of this would you like to change/restore?” Use that to guide discussion of equipment, partner communication, self-identity and expectations — not just physical sexual function.📄 Citation:
Allen, A., Heck, M., Doig, C., Cudmore, T., Lawrence, K., & Mason, J. (2025). Sexual rehabilitation support experiences of Australian adults living with a spinal cord injury. The Journal of Spinal Cord Medicine, 1–10.
https://doi.org/10.1080/10790268.2025.2496567
2. Exploring Intimacy and Pleasure
Off the back of research findings and clinical work, Dr Heck has also released The Sensuality of Connection: An Erotic Playbook to Intimacy After Spinal Cord Injury, to bridge the gap. Whilst the guide is designed for people living with SCI—it is truly suitable for everyone! This resource encourages exploring connection, intimacy, and pleasure in new, playful ways.- 📘 English edition: Amazon AU link
- 📗 German edition: Sinnlichkeit der Verbundenheit Amazon AU link
Whether you’re a researcher, clinician, or someone interested in living well after SCI, Dr Heck’s latest work offers insights and practical tools to support recovery, wellbeing, and connection.
Get in touch / learn more:
Dr Marita Heck
The Hopkins Centre
marita.heck@griffith.edu.au -
Financial Toxicity and Quality of Life

May marks Brain Cancer Awareness Month—a time to spotlight not only the medical but also the financial and emotional toll of brain tumours. New honours research by Jasmine Luttrell reveals that over half of brain tumour survivors report significant financial hardship, which is closely linked to increased anxiety and reduced quality of life.
This study, led by Prof. Tamara Ownsworth was a NHMRC funded collaboration between Griffith University, Metro South Health (Radiation Oncology) and the Cancer Council Queensland.





Find out more:
https://www.hopkinscentre.edu.au/news-view/brain-cancer-financial-toxicity-and-quality-of-503
Read the full paper in the Journal of Cancer Survivorship.
https://link.springer.com/article/10.1007/s11764-025-01814-4
Citation
Luttrell, J., Lion, K., Pinkham, M. B., Collins, L. G., Ownsworth, T. The impact of financial toxicity on quality of life for survivors of primary brain tumour. Journal of Cancer Survivorship (2025).

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See Me. Hear Me. Respect Me.
Have your say – help shape better healthcare for people with disability in Queensland.
Griffith University researchers want to hear from people with disability and their supporters about healthcare experiences – what’s improved and what still needs to change.
This work is part of an evaluation of the "See Me. Hear Me. Respect Me." campaign — a Queensland Health initiative co-designed with people with disability to help health professionals and the community better understand, respect, and include people with disability.

You can take the survey even if you haven’t heard of the campaign.
🕒 It takes about 15–20 minutes
♿ Accessible formats are available
🎁 Go in the draw to win 1 of 3 $50 gift vouchersWho can do the survey?
People aged 18+
Living in Queensland
A person with disability, or a carer/family member/significant other of a person with disability📣 Your voice matters!
Your feedback will help improve healthcare and create more respectful, inclusive services across Queensland.
👉 Share your experience or learn more about the survey: https://inclusivefutures.griffith.edu.au/evaluation?utm_source=ehq_newsletter&utm_medium=email&utm_campaign=ehq-Inclusive-Futures-April-Monthly-Roundup&utm_campaign=website&utm_medium=email&utm_source=ehq
📩 More information:Dr Kelsey Chapman
Research Fellow
Griffith University
dignityproject@griffith.edu.auThis project is proudly supported by Queenslanders with Disability Network and the Queensland Government.
Let’s make sure everyone feels seen, heard and respected in healthcare.

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Moving Beyond Awareness: A Strengths-Based Approach to Autism Support
April is Autism Awareness Month, a time to celebrate the diversity and contributions of Australia’s autistic community. With over 290,900 autistic individuals across the country, the conversation is evolving—moving beyond awareness toward understanding, inclusion, and meaningful action.
On 2 April, World Autism Understanding Day (#WAUD2025), we are reminded that true inclusion starts with how we see, support, and empower autistic individuals. A growing body of research is challenging traditional models of autism assessment and support, advocating for a strengths-based approach.
WHY THIS MATTERS NOW:
The National Autism Strategy (2025-2031)As Australia prepares to implement the National Autism Strategy (2025-2031), integrating research-backed, person-centered approaches like this framework is crucial. By shifting towards strengths-based assessments, we can create a more inclusive society—one where autistic individuals are supported to live the lives they choose.
HOW YOU CAN MAKE A DIFFERENCE:
Learn & Share – Amplify research that promotes strengths-based, individualised support.
Listen to Autistic Voices – Inclusion starts with understanding lived experience.
Advocate for Change – Support workplaces, schools, and communities in adopting strengths-based approaches.
Autism Awareness Month is about more than recognition—it’s about real change. By embracing research-driven, strengths-based approaches, we can build a future where every autistic person is valued and empowered.
👉 Please share this research to help shift the conversation beyond awareness to action!
MORE INFORMATION:
The Hopkins Centre
hopkinscentre@griffith.edu.au -
Exploring Love and Disability: New Research by Dr. Marita Heck
Dr. Marita Heck, Adjunct Research Fellow, The Hopkins CentreDiscover groundbreaking insights into how individuals with disability navigate intimate relationships in Dr. Marita Heck's latest study. As an Adjunct Research Fellow at The Hopkins Centre, Dr. Heck combines her extensive experience as a nurse, midwife, and Sexual Quality of Life Support Clinician to shed light on this important topic. She is also the author of Secret Forces, a compelling novel that delves into the complexities of life after a spinal cord injury.
Read:https://dx.doi.org/10.1037/rep0000573
For more resources and support on sexual well-being for people with disability, visit the Sex Positive Community at https://www.sexpositivecommunity.com.
Join the conversation and help break down barriers surrounding love and disability. Share your thoughts and experiences with us!
Citation:
Ireland, B., Pebdani, R. N., Heck, M., Mudholkar, A., & Verdonck, M. (2024). Sex-positive sexuality post- spinal cord injury: A systematic review and qualitative metasynthesis. Rehabilitation Psychology. Advance online publication. https://dx.doi.org/10.1037/rep0000573More information:
Dr Marita Heck Phd, MMid (RM), BNS (RN)
Adjunt Research Fellow
The Hopkins Centre
Griffith University
marita.heck@griffith.edu.au
https://www.linkedin.com/in/dr-marita-heck-phd-591957310/ -
Empowering Health Communication: Co-Designing with People with Disability

📚 Authors: Dr Kelsey Chapman, Dr Connie Allen, Prof. Elizabeth Kendall AM GAICD
📅 Published: 9 February 2025
📖 Journal: Journal of Health Communication
🔗 DOI: https://doi.org/10.1080/10810730.2025.2462679How can we make health communication truly inclusive? A recent scoping review by Inclusive Futures: Reimagining Disability researchers explores the power of co-designing health initiatives with people with disability—not just for them.
Key Insights:
Inclusive Participation: Engaging people with disabilities from the outset ensures their voices shape accessible, effective health communications.
Diverse Methods: From workshops and focus groups to participatory action research, different co-design approaches foster genuine collaboration.
Enhanced Outcomes: Inclusive approaches improve the quality of health information, empower participants, and build trust in health initiatives.
This research reinforces that co-design isn’t just best practice—it’s essential. When health communication is built with the community, it becomes more impactful, equitable, and transformative.
More Information:
Dr Kelsey Chapman
Inclusive Futures: Reimagining Disability
Griffith University
k.chapman@griffith.edu.auProf. Elizabeth Kendall AM GAICD
e.kendall@griffith.edu.au
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Inclusive Futures Disability Research Writing Competition 2024
🌟 Celebrating Inclusive Futures and Outstanding Research! 🌟
On this International Day of People with Disability, we’re thrilled to announce the winner of the Inclusive Futures Disability Research Writing Competition 2024—a celebration of research that reimagines a world where disability is no barrier.

Judges' Choice Winner:
Ms Casey Doherty, University of Nevada, Reno, USA
Her paper, Reimagining Protest: Artivism in the Myalgic Encephalomyelitis (ME) Community, demonstrates how art and activism intersect to drive inclusion and understanding. Casey’s compelling narrative and accessible communication earned her the AUD$500 prize and a feature in our annual digital compendium.
✨ Short-listed entrants:
- Mrs Rhonda Beggs, Metro South Health
- Ms Belinda Coleman, RMIT / Aurecon
- Sarah Fulton, Redland Hospital, Metro South Health
- Dr Catherine Maitland, Australian Disability Network
- Mrs Laura Ryan, University of Queensland
- Dr Rebecca Soole, University of Queensland
- Ms Jane Wardlaw, University of Tasmania
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Mrs Louise White, Autism Centre of Excellence, Griffith University
Communicating complex research in an accessible way, is a challenging but essential skill. This competition highlights the importance of not only advancing academic knowledge, but also ensuring it reaches those who can benefit most.
We encourage all participants to continue honing their communication skills alongside their research. Accessible storytelling is a powerful tool for driving understanding and advancing disability inclusion.
A heartfelt thank you to all entrants for their impactful contributions. Together, we’re breaking barriers and building a more inclusive future. 💡
We would like to thank our sponsor The Hopkins Centre, who kindly donated the prize money, and our esteemed judges Dr Talitha Kingsmill, Dr Monique Lewis, Dr Faith Valencia-Forrester, Lisa Cox, Sara Shams and our moderator Delena Amsters.Interested in next year’s competition? Learn more about how your research could make a difference!
Follow us on social media and join our Inclusive Futures Mailing List for updates:
https://inclusivefutures.griffith.edu.auVisit our Inclusive Futures Hub to read the Judges’ Choice and short listed entries.
https://inclusivefutures.griffith.edu.au/inclusive-futures-research-writing-competition
For more information email: inclusivefutures@griffith.edu.au
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Disability Action Week 2024 – Accessible communication: connect, include and empower

🎉 It’s Disability Action Week 2024 (24 Nov – 1 Dec)! This year’s theme is Accessible Communication: Connect, Include, Empower.
Join us in celebrating inclusive communication for everyone! We’re excited to share some of the effective strategies and creative solutions we use at Inclusive Futures: Reimagining Disability and The Hopkins Centre, Griffith University, to make communication more accessible for all.

Did you know?
More than 1.3 billion people worldwide–including 21.4% of Australians–live with a disability or chronic health condition?
Disability results from the interaction between people with impairments and attitudinal and environmental barriers that impacts full participation in society on an equal basis with others.
Disability: The Statistics
- 16% of the world’s population or over 1.3 billion people experience some form of disability.[1]
- 21.4% of Australians or 5.5 million people experience disability and live with an impairment.[2]
- 7.6% of Australian children <15 experience some form of disability.[3]
- 650,000 people in Australia are active NDIS participants with approved plans.[4]

Accessible Communication for Everyone
Accessible communication is essential for creating a society that connects and includes everyone, regardless of ability. Clear, inclusive communication helps to ensure that information, services, and opportunities are available to all people, breaking down barriers and fostering genuine engagement in every aspect of life.
Consider your Audience
When creating content, consider the divers learning and communication needs of your audience. Accessible technologies and inclusive communication materials are essential to effectively reach and support people with disability, with approximately half of all Australians with disability reported to use some form of aid or assistive device. Further, almost 1 in 10 have experienced discrimination or unfair treatment because of their disability needs.
Accessibility for the d/Deaf and signing community
Approximately 466 million people (or 6.1% of the world’s population) are living with hearing loss. In Australia, one in six people are affected by a variety of forms of hearing loss. There are 30,000 Australian Sign Language (Auslan) users.[5]Some ways of supporting the d/Deaf and the signing community include:
- Use subtitles and captions – preferably live captions where possible
- Use the services of an Auslan interpreter (where needed)
- Provide verbatim transcripts of live events, meetings and events
- Enable technology access
- Facilitate the use of online chats in virtual meetings (as an option) – NB: lipreading, captioning and Auslan interpreting is preferred
- Use digital whiteboards, this is especially helpful in medical settings or emergencies.

Accessibility for blind, low vision and other vision impairments- Use large, scalable, legible fonts – preferably sans serif, upper and lower case, with high contrast such as bold and normal text
- Avoid the use of all caps, italics and underline (unless a hyperlink)
- Use clear, high contrast colours – use an accessibility colour checker
- Ensure your communication is screen reader accessible
- Use alternative (Alt) text on images and label decorative objects as such
- Use braille where possible, especially on signage in public spaces
- Provide multiple / alternate formats
- Use pattern, texture, shapes and labels rather than colour, especially on graphs, charts and diagrams
- Do not use too much red or colour, just for the sake of using colour – this is not helpful for individuals with low vision or those who are colour blind.

Communication accessibility for mobility disability
- Use accessible spaces and conduct site visits where possible
- Offer hands-free options such as lapel microphones
- Offer multiple formats e.g. print, written, audio, video and digital, depending on your target audience and their requirements
- Use assistive technologies such as speech-to-text, eye-tracking systems, adaptive keyboards, headsets and mounted devices.

Cognitive considerations
- Visual Aids – Provide visual aids, step-by-step instructions, or prompts for individuals with cognitive impairments
- Be Patient – Be patient with slower or non-verbal communicators; confirm understanding with repetition or paraphrasing
- Assistive Technologies – Use apps or devices that facilitate simple, customisable communication (e.g., ACC or communication boards)
- Avoid Special Effects – Avoid the heavy use of effects such as animation, transition, flickering or strobing in multimedia
- Use Plain Language – Use plain, straightforward language to reduce cognitive load for individuals with brain injury / processing difficulties
- Easy Read & Visual Aids – Incorporate gestures, visual aids and easy read formats to supplement standard verbal and written communication.

Design for equal access
By embracing accessible designs and tools, we create environments where everyone has equal opportunities to connect, understand, and participate fully.- Design for accessibility and inclusion
- Use inclusive language
- Apply universal design principals
- Embrace co-design
- Test your content
- Facilitate inclusion training for your staff.
Our Commitment at Inclusive Futures and The Hopkins Centre
At Inclusive Futures: Reimagining Disability and The Hopkins Centre at Griffith University, we’re dedicated to leading the way in accessible practices. Here’s a look at some of the ways we’re advancing inclusion and accessibility:- Developing research on communication access and tools to support diverse needs, including our new Inclusive Events Checklist.
- Integrating inclusive communication into all research projects, translation and dissemination, for example Voice of Queenslanders with Disability, ARC Adjudicating Rights for a Sustainable National Disability Insurance Scheme, and Partnership to understand Indigenous experiences of CTP.
- Hosting inclusive events and workshops, which seek to lead from the front and by example – for example our recent Hopkins Centre Bold Ideas Better Solutions Symposium and Inclusive Futures: Winning Medals with Equity and Diversity Symposium, Book Club Events and our successful Inclusivity in Play Pitch Festival.
- Engaging in projects that drive innovation in assistive communication technologies, including:
- We offer partnerships, consultation, resources, and training to support organisations in developing inclusive practices. Our programs are led by co-designers with lived experience of disability through initiatives like the Dignity Project and Inclusive Voices. Additionally, we equip the next generation of citizen researchers through our Citizen Researcher Essentials: A Short Course.
Together, we are building a world where everyone can connect, be included, and feel empowered. Discover how you can integrate accessible communication practices into your workplace, starting with small, impactful steps.
Thank you for committing to a future where communication is accessible to all.
MORE INFORMATIONFor more information, collaborate or to partner with us in creating inclusive accessible content, research, projects or events, please email: inclusivefutures@griffith.edu.au or hopkinscentre@griffith.edu.au
DISCLAIMER
We use person-first language and follow the definition provided by the CRPD. However, we fully respect and support each individual’s right to use language and describe their identity in ways that feel authentic to them.
REFERENCES[1] The World Health Organisation, 2024.
[2] Australian Bureau of Statistics, 2022.
[3] Queensland Government, 2024.
[4] NDIS, 2024.
[5] Australian Bureau of Statistics, 2022.