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  • Financial Toxicity and Quality of Life

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    Brain Cancer and the Hidden Cost Financial Toxicity and Quality of Life. A powerful graphic of a brain with symbolic financial icons—e.g., coins, receipts, stress symbols and magnifying glass over a brain cancer. The Griffith University logo features at the top.May is Brain Cancer Awareness Month Let’s talk about more than just treatment. Brain tumour survivors face a hidden toll: financial toxicity. Vector image of a man with magnifying glass looking inside a brain which has an illuminated light globe with a dollar sign. Griffith University logo bottom leftMay marks Brain Cancer Awareness Month—a time to spotlight not only the medical but also the financial and emotional toll of brain tumours.

    New honours research by Jasmine Luttrell reveals that over half of brain tumour survivors report significant financial hardship, which is closely linked to increased anxiety and reduced quality of life.

    This study, led by Prof. Tamara Ownsworth was a NHMRC funded collaboration between Griffith University, Metro South Health (Radiation Oncology) and the Cancer Council Queensland.

    Over 50% of survivors report significant financial hardship— linked to higher anxiety and lower quality of life. An infographic image to show "50%" visually, with 5/10 figures shaded. And a woman sitting looking worried, with a chain anchoring her to a brain graphic. There are red lightening bolts coming from her head and a speech bubble with red dollar signs. Griffith University logo bottom left.

    What is financial toxicity? Illustrations for each point. 💸 Out-of-pocket costs (bag of money) 🚌 Transport, parking (plane, train, taxi, car) 🕒 Lost income from caregiving (wallet with a magnifying glass) 🏦 Depleted savings or debt (debt cycle image with red and black arrows with a pile of dollar notes and coins).

    What we found: • People with more aggressive tumours reported more financial distress • Greater financial burden = higher anxiety • Anxiety partially explains reduced quality of life Simple flow diagram with text and arrows to show the relationships. Accompanied with a vector image of a brain and hand holding a magnifying glass to show a brain cancer.


    We need action. Early screening for financial strain and tailored financial advice and support could improve wellbeing. It’s time to treat the whole person—not just the tumour. Vector image showing two women talking. Griffith University logo in bottom right corner.

    🔍 Read the full study In the Journal of Cancer Survivorship By Jasmine Luttrell, Prof. Tamara Ownsworth and colleagues Griffith University | Metro South Health | Cancer Council QLD (Logos) https://link.springer.com/article/10.1007/s11764-025-01814-4


    Find out more:

    https://www.hopkinscentre.edu.au/news-view/brain-cancer-financial-toxicity-and-quality-of-503


    Read the full paper in the Journal of Cancer Survivorship.

    https://link.springer.com/article/10.1007/s11764-025-01814-4

    Citation

    Luttrell, J., Lion, K., Pinkham, M. B., Collins, L. G., Ownsworth, T. The impact of financial toxicity on quality of life for survivors of primary brain tumour. Journal of Cancer Survivorship (2025).


    More Information Contact: Professor Tamara Ownsworth Research Director, The Hopkins Centre School of Applied Psychology Griffith University t.ownsworth@griffith.edu.au https://www.hopkinscentre.edu.au/news-view/brain-cancer-financial-toxicity-and-quality-of-503

  • See Me. Hear Me. Respect Me.

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    Have your say – help shape better healthcare for people with disability in Queensland.

    Griffith University researchers want to hear from people with disability and their supporters about healthcare experiences – what’s improved and what still needs to change.

    This work is part of an evaluation of the "See Me. Hear Me. Respect Me." campaign — a Queensland Health initiative co-designed with people with disability to help health professionals and the community better understand, respect, and include people with disability.

    A young woman with long wavy hair, wearing a green dress with white dots, stands confidently with arms crossed, smiling. Behind her is a colourful background featuring orange, pink, and yellow wave designs. A speech bubble above her reads, “SEE ME. HEAR ME. RESPECT ME.” Theatre mask icons and music notes appear in the background. Text below says: “See, hear and respect me for who I am.” The words “respect me” and “for who I am” are highlighted in colour. Logos at the bottom include Improving Healthcare for People with Disability, QDN (Queenslanders with Disability Network), and Queensland Government.

    You can take the survey even if you haven’t heard of the campaign.

    🕒 It takes about 15–20 minutes
    ♿ Accessible formats are available
    🎁 Go in the draw to win 1 of 3 $50 gift vouchers

    Who can do the survey?
    People aged 18+
    Living in Queensland
    A person with disability, or a carer/family member/significant other of a person with disability

    📣 Your voice matters!

    Your feedback will help improve healthcare and create more respectful, inclusive services across Queensland.

    👉 Share your experience or learn more about the survey: https://inclusivefutures.griffith.edu.au/evaluation?utm_source=ehq_newsletter&utm_medium=email&utm_campaign=ehq-Inclusive-Futures-April-Monthly-Roundup&utm_campaign=website&utm_medium=email&utm_source=ehq


    📩 More information:

    Dr Kelsey Chapman
    Research Fellow
    Griffith University
    dignityproject@griffith.edu.au

    This project is proudly supported by Queenslanders with Disability Network and the Queensland Government.

    Let’s make sure everyone feels seen, heard and respected in healthcare.


    A woman with long dark curly hair, wearing a red top, smiles at the camera. Behind her is a colourful background with orange, pink, and yellow waves. Blue icons of music notes and a smiling face appear on the left. A speech bubble at the top says, “SEE ME. HEAR ME. RESPECT ME.” In the lower section, the text reads: “Disability doesn’t define me. We are all diverse.” The words “doesn’t define” and “all” are highlighted. Logos at the bottom include Improving Healthcare for People with Disability, QDN (Queenslanders with Disability Network), and Queensland Government.

  • Moving Beyond Awareness: A Strengths-Based Approach to Autism Support

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    April is Autism Awareness Month, a time to celebrate the diversity and contributions of Australia’s autistic community. With over 290,900 autistic individuals across the country, the conversation is evolving—moving beyond awareness toward understanding, inclusion, and meaningful action.

    On 2 April, World Autism Understanding Day (#WAUD2025), we are reminded that true inclusion starts with how we see, support, and empower autistic individuals. A growing body of research is challenging traditional models of autism assessment and support, advocating for a strengths-based approach.

    WHY THIS MATTERS NOW:
    The National Autism Strategy (2025-2031)

    As Australia prepares to implement the National Autism Strategy (2025-2031), integrating research-backed, person-centered approaches like this framework is crucial. By shifting towards strengths-based assessments, we can create a more inclusive society—one where autistic individuals are supported to live the lives they choose.

    HOW YOU CAN MAKE A DIFFERENCE:

    Learn & Share – Amplify research that promotes strengths-based, individualised support.

    Listen to Autistic Voices – Inclusion starts with understanding lived experience.

    Advocate for Change – Support workplaces, schools, and communities in adopting strengths-based approaches.

    Autism Awareness Month is about more than recognition—it’s about real change. By embracing research-driven, strengths-based approaches, we can build a future where every autistic person is valued and empowered.

    👉 Please share this research to help shift the conversation beyond awareness to action!

    MORE INFORMATION:

    The Hopkins Centre
    hopkinscentre@griffith.edu.au

  • Exploring Love and Disability: New Research by Dr. Marita Heck

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    Dr. Marita Heck, a young white woman with long, curly brown hair, smiles warmly at the camera. An inset features the cover of her novel, Secret Forces, depicting a man with his bare upper back facing a woman with long hair, standing against a striking horizon.Dr. Marita Heck, Adjunct Research Fellow, The Hopkins Centre

    Discover groundbreaking insights into how individuals with disability navigate intimate relationships in Dr. Marita Heck's latest study. As an Adjunct Research Fellow at The Hopkins Centre, Dr. Heck combines her extensive experience as a nurse, midwife, and Sexual Quality of Life Support Clinician to shed light on this important topic. She is also the author of Secret Forces, a compelling novel that delves into the complexities of life after a spinal cord injury.

    Read:https://dx.doi.org/10.1037/rep0000573

    For more resources and support on sexual well-being for people with disability, visit the Sex Positive Community at https://www.sexpositivecommunity.com.

    Join the conversation and help break down barriers surrounding love and disability. Share your thoughts and experiences with us!

    Citation:
    Ireland, B., Pebdani, R. N., Heck, M., Mudholkar, A., & Verdonck, M. (2024). Sex-positive sexuality post- spinal cord injury: A systematic review and qualitative metasynthesis. Rehabilitation Psychology. Advance online publication. https://dx.doi.org/10.1037/rep0000573

    More information:

    Dr Marita Heck Phd, MMid (RM), BNS (RN)
    Adjunt Research Fellow
    The Hopkins Centre
    Griffith University

    marita.heck@griffith.edu.au

    https://www.linkedin.com/in/dr-marita-heck-phd-591957310/

  • Empowering Health Communication: Co-Designing with People with Disability

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    Montage of images from the Disability Reform Summit 2024, featuring diverse people with disability collaborating with academics and researchers to co-design innovative solutions for a more inclusive future. Griffith Inclusive Futures: Reimagining Disability Logo (bottom right corner).

    📚 Authors: Dr Kelsey Chapman, Dr Connie Allen, Prof. Elizabeth Kendall AM GAICD
    📅 Published: 9 February 2025
    📖 Journal: Journal of Health Communication
    🔗 DOI: https://doi.org/10.1080/10810730.2025.2462679

    How can we make health communication truly inclusive? A recent scoping review by Inclusive Futures: Reimagining Disability researchers explores the power of co-designing health initiatives with people with disability—not just for them.

    Key Insights:

    Inclusive Participation: Engaging people with disabilities from the outset ensures their voices shape accessible, effective health communications.

    Diverse Methods: From workshops and focus groups to participatory action research, different co-design approaches foster genuine collaboration.

    Enhanced Outcomes: Inclusive approaches improve the quality of health information, empower participants, and build trust in health initiatives.

    This research reinforces that co-design isn’t just best practice—it’s essential. When health communication is built with the community, it becomes more impactful, equitable, and transformative.

    More Information:

    Dr Kelsey Chapman
    Inclusive Futures: Reimagining Disability
    Griffith University
    k.chapman@griffith.edu.au

    Prof. Elizabeth Kendall AM GAICD
    e.kendall@griffith.edu.au

    Montage of images from the Disability Reform Summit 2024, featuring diverse people with disability collaborating with academics and researchers to co-design innovative solutions for a more inclusive future. Griffith Inclusive Futures: Reimagining Disability Logo (bottom right corner).



  • Inclusive Futures Disability Research Writing Competition 2024

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    🌟 Celebrating Inclusive Futures and Outstanding Research! 🌟

    On this International Day of People with Disability, we’re thrilled to announce the winner of the Inclusive Futures Disability Research Writing Competition 2024—a celebration of research that reimagines a world where disability is no barrier.

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    Judges' Choice Winner:

    Ms Casey Doherty, University of Nevada, Reno, USA
    Her paper, Reimagining Protest: Artivism in the Myalgic Encephalomyelitis (ME) Community, demonstrates how art and activism intersect to drive inclusion and understanding. Casey’s compelling narrative and accessible communication earned her the AUD$500 prize and a feature in our annual digital compendium.


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    ✨ Short-listed entrants:

    • Mrs Rhonda Beggs, Metro South Health
    • Ms Belinda Coleman, RMIT / Aurecon
    • Sarah Fulton, Redland Hospital, Metro South Health
    • Dr Catherine Maitland, Australian Disability Network
    • Mrs Laura Ryan, University of Queensland
    • Dr Rebecca Soole, University of Queensland
    • Ms Jane Wardlaw, University of Tasmania
    • Mrs Louise White, Autism Centre of Excellence, Griffith University

    Communicating complex research in an accessible way, is a challenging but essential skill. This competition highlights the importance of not only advancing academic knowledge, but also ensuring it reaches those who can benefit most.

    We encourage all participants to continue honing their communication skills alongside their research. Accessible storytelling is a powerful tool for driving understanding and advancing disability inclusion.

    A heartfelt thank you to all entrants for their impactful contributions. Together, we’re breaking barriers and building a more inclusive future. 💡

    We would like to thank our sponsor The Hopkins Centre, who kindly donated the prize money, and our esteemed judges Dr Talitha Kingsmill, Dr Monique Lewis, Dr Faith Valencia-Forrester, Lisa Cox, Sara Shams and our moderator Delena Amsters.

    Interested in next year’s competition? Learn more about how your research could make a difference!

    Follow us on social media and join our Inclusive Futures Mailing List for updates:
    https://inclusivefutures.griffith.edu.au

    Visit our Inclusive Futures Hub to read the Judges’ Choice and short listed entries.

    https://inclusivefutures.griffith.edu.au/inclusive-futures-research-writing-competition

    For more information email: inclusivefutures@griffith.edu.au



  • Disability Action Week 2024 – Accessible communication: connect, include and empower

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    Griffith University: Inclusive Futures: Reimagining Disability. Disability Action Week - Accessible Communication. Connect. Include. Empower. Cartoon graphics of diverse people standing above the Hopkins Centre Logo.

    🎉 It’s Disability Action Week 2024 (24 Nov – 1 Dec)! This year’s theme is Accessible Communication: Connect, Include, Empower.

    Join us in celebrating inclusive communication for everyone! We’re excited to share some of the effective strategies and creative solutions we use at Inclusive Futures: Reimagining Disability and The Hopkins Centre, Griffith University, to make communication more accessible for all.

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    Did you know?

    More than 1.3 billion people worldwide–including 21.4% of Australians–live with a disability or chronic health condition?

    Disability results from the interaction between people with impairments and attitudinal and environmental barriers that impacts full participation in society on an equal basis with others.


    Disability: The Statistics

    • 16% of the world’s population or over 1.3 billion people experience some form of disability.[1]
    • 21.4% of Australians or 5.5 million people experience disability and live with an impairment.[2]
    • 7.6% of Australian children <15 experience some form of disability.[3]
    • 650,000 people in Australia are active NDIS participants with approved plans.[4]

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    Accessible Communication for Everyone
    Accessible communication is essential for creating a society that connects and includes everyone, regardless of ability. Clear, inclusive communication helps to ensure that information, services, and opportunities are available to all people, breaking down barriers and fostering genuine engagement in every aspect of life.


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    Consider your Audience
    When creating content, consider the divers learning and communication needs of your audience. Accessible technologies and inclusive communication materials are essential to effectively reach and support people with disability, with approximately half of all Australians with disability reported to use some form of aid or assistive device. Further, almost 1 in 10 have experienced discrimination or unfair treatment because of their disability needs.


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    Accessibility for the d/Deaf and signing community
    Approximately 466 million people (or 6.1% of the world’s population) are living with hearing loss. In Australia, one in six people are affected by a variety of forms of hearing loss. There are 30,000 Australian Sign Language (Auslan) users.[5]

    Some ways of supporting the d/Deaf and the signing community include:

    • Use subtitles and captions – preferably live captions where possible
    • Use the services of an Auslan interpreter (where needed)
    • Provide verbatim transcripts of live events, meetings and events
    • Enable technology access
    • Facilitate the use of online chats in virtual meetings (as an option) – NB: lipreading, captioning and Auslan interpreting is preferred
    • Use digital whiteboards, this is especially helpful in medical settings or emergencies.

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    Accessibility for blind, low vision and other vision impairments

    • Use large, scalable, legible fonts – preferably sans serif, upper and lower case, with high contrast such as bold and normal text
    • Avoid the use of all caps, italics and underline (unless a hyperlink)
    • Use clear, high contrast colours – use an accessibility colour checker
    • Ensure your communication is screen reader accessible
    • Use alternative (Alt) text on images and label decorative objects as such
    • Use braille where possible, especially on signage in public spaces
    • Provide multiple / alternate formats
    • Use pattern, texture, shapes and labels rather than colour, especially on graphs, charts and diagrams
    • Do not use too much red or colour, just for the sake of using colour – this is not helpful for individuals with low vision or those who are colour blind.

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    Communication accessibility for mobility disability

    • Use accessible spaces and conduct site visits where possible
    • Offer hands-free options such as lapel microphones
    • Offer multiple formats e.g. print, written, audio, video and digital, depending on your target audience and their requirements
    • Use assistive technologies such as speech-to-text, eye-tracking systems, adaptive keyboards, headsets and mounted devices.

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    Cognitive considerations

    • Visual Aids – Provide visual aids, step-by-step instructions, or prompts for individuals with cognitive impairments
    • Be Patient – Be patient with slower or non-verbal communicators; confirm understanding with repetition or paraphrasing
    • Assistive Technologies – Use apps or devices that facilitate simple, customisable communication (e.g., ACC or communication boards)
    • Avoid Special Effects – Avoid the heavy use of effects such as animation, transition, flickering or strobing in multimedia
    • Use Plain Language – Use plain, straightforward language to reduce cognitive load for individuals with brain injury / processing difficulties
    • Easy Read & Visual Aids – Incorporate gestures, visual aids and easy read formats to supplement standard verbal and written communication.

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    Design for equal access
    By embracing accessible designs and tools, we create environments where everyone has equal opportunities to connect, understand, and participate fully.

    • Design for accessibility and inclusion
    • Use inclusive language
    • Apply universal design principals
    • Embrace co-design
    • Test your content
    • Facilitate inclusion training for your staff.

    Our Commitment at Inclusive Futures and The Hopkins Centre
    At Inclusive Futures: Reimagining Disability and The Hopkins Centre at Griffith University, we’re dedicated to leading the way in accessible practices. Here’s a look at some of the ways we’re advancing inclusion and accessibility:

    Together, we are building a world where everyone can connect, be included, and feel empowered. Discover how you can integrate accessible communication practices into your workplace, starting with small, impactful steps.

    Thank you for committing to a future where communication is accessible to all.

    MORE INFORMATION For more information, collaborate or to partner with us in creating inclusive accessible content, research, projects or events, please email: inclusivefutures@griffith.edu.au or hopkinscentre@griffith.edu.auMORE INFORMATION

    For more information, collaborate or to partner with us in creating inclusive accessible content, research, projects or events, please email: inclusivefutures@griffith.edu.au or hopkinscentre@griffith.edu.au


    DISCLAIMER
    We use person-first language and follow the definition provided by the CRPD. However, we fully respect and support each individual’s right to use language and describe their identity in ways that feel authentic to them.


    REFERENCES

    [1] The World Health Organisation, 2024.

    [2] Australian Bureau of Statistics, 2022.

    [3] Queensland Government, 2024.

    [4] NDIS, 2024.

    [5] Australian Bureau of Statistics, 2022.

  • Empowering People with Developmental Language Disorder: A Push for Greater Inclusion

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    A graphic with a lady holding a clipboard with the words: Developmental Language Disorder Day #DLD Day, speak up for DLD, Friday, 18 October 2024.

    Imagine you’re traveling in a country where you don’t speak the language and you order a coffee. You might get a bit tongue tied or can’t quite remember what the barista said to you. These language difficulties occur every single day for the 2 million Australians with Developmental Language Disorder (DLD).

    DLD is a common but often overlooked disability, affecting 1 in 14 people globally (Norbury et al., 2016). In Australia, recent studies estimate that approximately 6.4% of children aged 10 have DLD (Calder et al., 2022). Despite its prevalence, DLD remains largely invisible, with less than 20% of Australians aware of the condition (Kim et al., 2022). This lack of awareness contributes to stigma, leaving many with DLD feeling isolated and unsupported.

    DLD is a lifelong, neurodevelopmental condition that impacts the ability to understand and use language, often hindering educational and employment opportunities (Cronin, 2017). Unlike some other conditions, people with DLD do not look different to their peers, which can make it challenging to diagnose and even harder to advocate for necessary support.

    A Call for Greater Awareness and Support

    The international consensus on DLD, established by the CATALISE consortium, emphasises the need for unified terminology and greater public awareness (Bishop et al., 2016; Bishop et al., 2017). While DLD is recognised as a neurodevelopmental disorder in the World Health Organization's ICD-11, the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) still uses the outdated term "Language Disorder," with narrower criteria. This inconsistency complicates public understanding and hampers efforts to secure appropriate support for individuals with DLD (McGregor, 2020).

    In Australia, Speech Pathology Australia has endorsed the term DLD, but challenges remain in ensuring individuals receive the intervention and support they need. Diagnosis often occurs only when children reach school age, and inconsistent access to speech pathology services across states makes it difficult for families to get timely help (Calder et al., 2022).

    Challenges in Education and Employment

    For children with DLD, early and consistent intervention is crucial. Without it, they are at higher risk of experiencing difficulties in reading, spelling, and mathematics. Statistics reveal that students with DLD are six times more likely to struggle with these skills, putting them at a disadvantage in the classroom (Young et al., 2002).

    Dr Shaun Ziegenfusz (Lecturer, School of Health Sciences and Social Work) has investigated the educational needs and supports of school-aged students with DLD in Australia during his recently completed doctorate. He found students with DLD face challenges across the entire school curriculum, particularly in literacy and numeracy (Ziegenfusz et al., 2022). A national survey involving teachers, allied health professionals, and parents/caregivers highlighted that literacy, behaviour, and communication were the most significant areas of need for students with DLD. To address these challenges, participants suggested that additional time, visual supports, and individualised approaches would be beneficial. Teenagers with DLD echoed these sentiments, identifying literacy and numeracy as their biggest areas of need. They also agreed with the suggested supports from adults but emphasised the potential benefits of integrating technology into their learning experience. In response to teacher feedback, Shaun developed a 90-minute webinar which enhanced teachers’ knowledge, promoted supportive attitudes, and encouraged the use of evidence-based educational practices when working with students with DLD.

    The long-term impacts of DLD extend beyond education. Adults with DLD are twice as likely to go over a year without employment compared to their peers (Law et al., 2009). This disparity highlights the need for better support systems that provide targeted skills development and workplace accommodations to ensure that people with DLD can thrive in professional environments.

    The Push for National Support

    Currently, DLD is not included on the National Disability Insurance Scheme (NDIS) lists, which makes it challenging for individuals with DLD to access comprehensive support. For example, more than 200,000 Autistic individuals (<1% of the population) access the NDIS compared to 150 DLD individuals. Advocates argue that inclusion in the NDIS would streamline access to resources, reducing the burden on families and ensuring those with DLD receive the necessary support to reach their potential.

    Speech pathologists, psychologists, and educators stress the importance of a multidisciplinary approach to intervention, particularly for children in school settings (Toseeb et al., 2017). Adjustments and accommodations to learning and assessment in the classroom are essential for helping students with DLD succeed academically. For adults, ongoing access to speech pathology services and other therapies can improve communication skills, enhance employability, and reduce social isolation often associated with DLD.

    Looking to the Future

    Advocates and researchers recommend several steps to improve outcomes for those with DLD:

    1. Increased Awareness Campaigns: Public health initiatives should aim to educate the public about DLD to reduce stigma and increase understanding.
    2. Improved Access to Support Services: A unified funding approach in Australia would help ensure individuals with DLD receive adequate speech pathology services, exceeding the current limit of five subsidised sessions under the Chronic Disease Management plan.
    3. Education and Training for Professionals: Training educators, GPs, and NDIS planners in recognizing and supporting DLD is vital to creating a more inclusive environment for those affected.
    4. Research Funding: More funding is needed to understand the long-term impacts of DLD and to develop effective interventions that can be implemented across different stages of life (McGregor et al., 2020).

    Conclusion

    DLD is a hidden disability that affects many Australians, yet awareness and support remain insufficient. By addressing these gaps through education, improved access to services, and policy changes, Australia can foster a more inclusive society where individuals with DLD are empowered to achieve their goals. Positive disability inclusion is about recognizing invisible challenges like DLD and ensuring that those affected are given every opportunity to thrive.

    Getting involved in DLD this 18 October and “Speak Up for DLD”. Visit TheDLDProject.com and RADLD.org to find out more. By participating, you can empower people with DLD to live a life of their own choosing.

    DLD - Fast Facts

    A graphic with a lady pointing to icons of 14 white people icons, one is shaded in yellow to represent the text. Developmental Language Disorder is a hidden but common disability that affects 1 in 14 people causing difficulties understanding and using language for no known reason.

    A graphic showing two women with speech bubbles and a head with clouds and question marks, visually representing the text. DLD is a diagnosis given to a person who has difficulty talking and/or understanding language. Diagnosis is made by a speech pathologist however, a person with DLD may need support from other health professionals.

    A graphic with two people communicating, one is a person of colour and the other a wheelchair user with speech bubbles between them and a map of the world in the background. The words read: DLD affects an individual’s life, regardless of their nationality and language. Speaking more than one language does not cause DLD.

    A graphic with a male speaking with a young girl with speech bubbles between them and question and exclamation marks. DLD has a genetic and biological basis, but there is not a single known cause. DLD is not caused by how parents verbally interact with their children.

    A graphic with a man standing with question marks above his head, he looks visibly worried accompanied with the text: DLD – The Facts. Children with DLD are 4 times more likely to have math disability and 6 times more likely to have reading disability. DLD is 50 times more prevalent than hearing impairment and 5 times more prevalent than autism.

    A graphic with a head with squiggly line surrounded by words in bubbles. Co-occuring conditions can include Dyslexia, ADHD, Mental Health Issues and Learning Difficulties.

    A graphic representing signs of DLD. People with DLD will often have difficulty paying attention; struggle to remember what they have been told; struggle to find the words to express ideas; find it hard to understand words, follow instructions or answer questions; experience challenges with reading and writing; and have trouble saying words in the right order, engaging in conversations or telling a story.

    Graphic with diverse people with the words: A DLD diagnosis can lead to an individual accessing supports and highlight their man strengths such as being: compassionate, thinkers, creative, social, unique.

    Graphic with a large group of diverse people with the text: DLD is a common neurodevelopmental condition impacting 2 million Australians. People with DLD can succeed in life, with the right supports that meet their unique strengths and areas of need. If you are concerned, see a speech pathologist.

    More information: The DLD Project is an impact focused social enterprise founded to elevate awareness and understanding of DLD in Australia. Connect with us Natalie Turner, Co-CEO and Co-Founder, Dr Shaun Ziegenfusz, Lecturer, Griffith University, Co-CEO and Co-Founder, The DLD Project. Email: connect@thedldproject.com or visit the website: TheDLDproject.com. Visit us on social media: Facebook, LinkedIn and Twitter.

    References

    Bishop, D. V. M., Snowling, M. J., Thompson, P. A., Greenhalgh, T., & Schiller, N. O. (2016). CATALISE: A multinational and multidisciplinary Delphi consensus study. Identifying language impairments in children. PLOS ONE, 11(7).

    Bishop, D. V. M., Snowling, M. J., Thompson, P. A., & Greenhalgh, T. (2017). Phase 2 of CATALISE: a Multinational and multidisciplinary Delphi consensus study of problems with language development: terminology. Journal of Child Psychology and Psychiatry, 58(10), 1068-1080. https://doi.org/10.1111/jcpp.12721

    Calder, S. D., Brennan‐Jones, C. G., Robinson, M., Whitehouse, A., & Hill, E. (2022). The prevalence of and potential risk factors for developmental language disorder at 10 years in the Raine Study. Journal of Paediatrics and Child Health, 58(11), 2044-2050. https://doi.org/10.1111/jpc.16149

    Conti‐Ramsden, G., Durkin, K., Toseeb, U., Botting, N., & Pickles, A. (2018). Education and employment outcomes of young adults with a history of developmental language disorder. International Journal of Language & Communication Disorders, 53(2), 237-255. https://doi.org/10.1111/1460-6984.12338

    Cronin, P., Reeve, R., McCabe, P., Viney, R., & Goodall, S. (2017). The impact of childhood language difficulties on healthcare costs from 4 to 13 years: Australian longitudinal study. International Journal of Speech-Language Pathology, 19(4), 381-391. https://doi.org/10.1080/17549507.2016.1216599

    Kim, J.-H., Davies, B., & Xu Rattanasone, N. (2023). Have You Heard of Developmental Language Disorder? An Online Survey. Communication Disorders Quarterly, 44(4), 228-238. https://doi.org/10.1177/15257401221115822

    Law, J., Dennis, J. A., & Charlton, J. J. V. (2017). Speech and language therapy interventions for children with primary speech and/or language disorders. Cochrane Database of Systematic Reviews(1).https://doi.org/10.1002/14651858.CD012490

    Law, J., Rush, R., Schoon, I., & Parsons, S. (2009). Modeling developmental language difficulties from school entry into adulthood: Literacy, mental health, and employment outcomes. Journal of Speech, Language, and Hearing Research, 52(6), 1401-1416. https://doi.org/10.1044/1092-4388(2009/08-0142)

    McGregor, K. K. (2020). How we fail children with developmental language disorder. Language, Speech, and Hearing Services in Schools, 51(4), 981-992. https://doi.org/10.1044/2020_LSHSS-20-00003

    Norbury, C. F., Gooch, D., Wray, C., Baird, G., Charman, T., Simonoff, E., Vamvakas, G., & Pickles, A. (2016). The impact of nonverbal ability on prevalence and clinical presentation of language disorder: Evidence from a population study. Journal of Child Psychology and Psychiatry, 57(11), 1247-1257. https://doi.org/10.1111/jcpp.12573

    Toseeb, U., Pickles, A., Durkin, K., Botting, N., & Conti-Ramsden, G. (2017). Prosociality from early adolescence to young adulthood: A longitudinal study of individuals with a history of language impairment. Research in Developmental Disabilities, 62, 148–159. https://doi.org/10.1016/j.ridd.2017.01.018

    Young, A. R., Beitchman, J. H., Johnson, C., Douglas, L., Atkinson, L., Escobar, M., & Wilson, B. (2002). Young adult academic outcomes in a longitudinal sample of early identified language impaired and control children. Journal of Child Psychology and Psychiatry, 43(5), 635-645. https://doi.org/10.1111/1469-7610.00052

    Ziegenfusz, S., Paynter, J., Flückiger, B., & Westerveld, M. F. (2022). A systematic review of the academic achievement of primary and secondary school-aged students with developmental language disorder. Autism & developmental language impairments, 7, 1-33. https://doi.org/10.1177/23969415221099397


  • Inclusive Futures Research Writing Competition 2024

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    Research reimagining a world where disability is not a barrier.

    Supported by The Hopkins Centre, Griffith University

    What is the Inclusive Futures Writing Competition?

    We are asking researchers to write about their research that contributes to an inclusive future for all. Entries must be written in easy-to-understand language and tell a compelling story about published or in-progress research that positively impacts the lives of people with disability.

    Who can enter the competition?

    The competition is open to individuals, not groups. To enter the competition, you must be a principal or associate investigator on the research you are writing about.

    How do I enter the competition?

    Register to enter the competition through the online entry form: https://forms.office.com/r/g3TEWh5frW.

    Entries are to be submitted via email to: inclusivefutures@griffith.edu.au

    You will be required to provide:

    • a photograph of yourself suitable for publication (headshot)
    • a biography of 60 to 80 words
    • a written piece about your research of 700 to 800 words, submitted as an Microsoft Word document
    • a copyright-free image that complements your written piece (optional)
    • some details about the research you are writing about e.g. ethics approval number, citation of a published article, funding acknowledgement, name of chief investigator–if this isn’t you.

    A young middle age woman with long brown hair sits crosslegged on the floor writing onto her laptop.

    What do I include in the written piece?

    Your written piece should:

    • explain your research (or a specific aspect of your research)
    • describe how your research will impact the lives of people with disability and contribute to an inclusive future for all
    • explain why readers should care about your research.

    What writing style do I use?

    • Using plain language, your piece should target a non-scientific audience.
    • A narrative or storytelling style that engages readers is preferred.
    • Avoid exaggeration and overreach. Be open, honest and realistic.
    • For guidelines on the use of Artificial intelligence (AI) please refer to the Inclusive Futures Research Writing Competition 'Terms and Conditions'.

    When does the competition close, and when will the winner be announced?

    Entries open Wednesday 23 October and close on Friday 22 November.

    The winning entry will be announced on International Day of People with Disability, Tuesday, 3 December 2024.

    How will my entry be judged?

    Members of a judging panel will independently score entries.

    The panel will consider:

    • Has the writer explained the research in a way that is easy to understand?
    • Has the writer made a clear case for how the research positively impacts the lives of people with disabilities and contributes to an inclusive future for all?
    • Does the writer explain why the reader should care about the research?
    • Is the piece compelling to read?

    The judges are:

    • Person (expert by experience)
    • Person (expert by experience)
    • Person (writing/journalism background)
    • Person (professional in the disability and rehabilitation area)

    What is the prize?

    All short-listed entries will be published in ‘Research for Inclusive Futures’, a digital compendium prepared and hosted by Inclusive Futures, Griffith University. The compendium will be freely available and widely shared.

    The entry voted the best by the judging panel will receive an AUD$500 cash prize and acknowledgement as the ‘Judges Choice’.

    Please read the Terms and Conditions and Frequently Asked Questions (FAQ) documents on our website for more detailed information.

    If you have any questions, please email inclusivefutures@griffith.edu.au

    More information

    Find out more and access all supporting documents on our website or by scanning the QR code below.

    A young man and wheelchair user sits at his desk typing on his laptop, he is holding a pet dog in his lap.




  • Winning Medals with Equity and Diversity: A symposium championing equity and diversity in Paralympic sports

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    Front page of the Invitation with Griffith University Logo and a colour image of paralympic champion Madi de Rozario sitting in her racing chair. Text: Inclusive Futures: Reimagining Disability “Winning Medals with Equity and Diversity: A symposium championing equity and diversity in Paralympic sports. Friday, 8 November 2024, 9 am-3.30 pm, Online event.

    Back page of invitation: Text as per caption. Registration QR code or via URL: https://forms.office.com/r/LBHEY9iktm. Logos of partners: Queensland Government, QUT, The University of Queensland, Sporting Wheelies and Griffith University. CRICOS: 00233E; TEQSA: PRV12076.


    Griffith Inclusive Futures, a proud member of the Queensland Para Sport Network for Performance Enhancement and Applied Research (QPSN) is thrilled to host:

    Winning Medals with Equity and Diversity: A symposium championing equity and diversity in Paralympic sports

    Friday, 8 November 2024, 9 am–3:30 pm, Online Event

    This symposium, hosted by Griffith University’s Inclusive Futures: Reimagining Disability, as a member of the Queensland Para Sport Network, brings together interdisciplinary researchers, community partners, and athletes to amplify the vital role equity and diversity can play in improving the performance of Paralympic teams and enabling athletes to compete at the highest possible standard.

    The symposium will explore equity and diversity in elite paralympic sport through the lens of exercise and sport science, social justice, tourism and leisure, sport management, disability rehabilitation and inclusion. Building toward the Brisbane Olympic and Paralympic Games in 2032, this is a key opportunity for participants to incorporate the pillars of equity and diversity into their performance programs and research to drive performance.

    EVENT SCHEDULE

    9.00 am – 9:10 am
    Opening Remarks/ Housekeeping
    Master of Ceremonies: Ella Sablijak

    9:10 am - 9.40 am
    Keynote Introduction: Winning Medals with Equity and Diversity
    Presenter: Natalie Charlton

    9:40 am - 9:50 am
    Questions

    9:50 am – 10:00 am
    10-minute break

    10.00 am – 12.30 pm
    Performance Priorities Lightning Round

    10:00 am – 10:25 am
    Gender Equity and Paralympic Sport
    Presenters: Dr Georgia Munro-Cook and A/Prof. Adele Pavlidis

    10:25 am – 10:30 am
    Questions

    10:30 am – 10:55 am
    Optimising Participation and Performance for First Nations and CALD Athletes
    Presenter: Dr Kerry Hall and Dr Diti Bhattacharya

    10:55 am – 11:00 am
    Questions

    11:00 am – 11:25 am
    The Paradox of Equity, Diversity and Inclusion in Paralympic Classification
    Presenter: Prof. Sean Tweedy

    11:25 am – 11:30 am
    Questions

    11:30 am – 11:55 am
    Equity and Design Thinking in Technology Innovation for Impro    ved Performance
    Presenters: Prof. Laurent Fossard and Matthew McShane

    11:55 am – 12:00 pm
    Questions

    12:00 pm – 12:25 pm
    Creating Environments to Optimise Performance of Athletes with High Support Needs
    Presenters: Sharon Hill and Rachel Watson

    12:25 pm – 12:30 pm
    Questions

    12:30 pm – 1:15 pm
    45-minute lunch break

    1:15 pm – 1:30 pm
    Performance priority poll

    1.30 pm – 3.00 pm
    Panel Discussion: “Ethical Decision Making - Inclusion Versus Equity?”
    Panel Members: Michael Dobbie-Bridges; Ben Newton; Robyn Smith

    • How can we create a cohesive sport system and strong pathways for para-athletes by centring inclusion?
    • How do inclusion and equity factor into our legacy planning?
    • What is the role of policy in driving inclusion and equity?
    • Brisbane 2032 – quality or quantity?

    3.00 pm–3.30 pm
    Closing remarks: Best Practice in Equity and Diversity to Drive Performance / Building Environments to Optimise Performance
    Presenters: Prof. Simone Fullagar and Prof. Brendan Burkett

    3.30 pm
    Event concludes
    Concluding poll

    MEET OUR SPEAKERS

    Meet our Master of Ceremonies — Ella Sablijak
    Fresh off her bronze medal performance with the Australian Steelers, Ella has graciously agreed to be the Master of Ceremony for our symposium. Ella has more than 15 years’ experience in elite sport at an international level – representing Australia in both Basketball and Wheelchair Rugby. She is the current Education Manager for Paralympics Australia, with positions on the International Wheelchair Basketball Federation (IWBF) Athlete Steering Committee, Paralympics Australia’s Athlete Commission and WADA’s Athlete Committee.

    Gender Equity and Paralympic Sport
    Presenters: Dr Georgia Munro-Cook and A/Prof. Adele Pavlidis

    During our Performance Priorities Lightening Round we will be discussing the important issue of gender equity and paralympic sport. Our presenters on this topic are Dr Geogia Munro-Cook and A/Prof. Adele Pavlidis, from the Sport and Gender Equity Research Hub. Georgia has successfully represented Australia in Wheelchair Basketball and is now a champion of promoting intersectional approaches to promoting positive experiences for women in disability sport. Adele’s work focuses on gender and power relations, specifically connecting social, cultural and health concepts in sport to drive inclusion. She is currently leading an international team to investigate mega-sport event sport participation legacies and experimenting with ways of co-creating knowledge with girls, women and non-binary people.

    Optimising Participation and Performance for First Nations and Culturally and Linguistically Diverse Athletes
    Presenters: Dr Kerry Hall and Dr Diti Bhattacharya

    During our Performance Priorities Lightening Round we will be discussing how to optimising participation and performance for First Nations and Culturally and Linguistically Diverse Athletes. Tackling this important issue is Dr Kerry Hall and Dr Diti Bhattacharya. Dr Kerry Hall is a proud descendant of the Kuku Thaypan, Kuku Warra and Lama Lama Peoples from Cape York Peninsula. Her work aims to address access, engagement and inequity issues specific to First Nations Peoples through collaboration and prioritising community voices and perspectives. Dr Diti Bhattachyarya’s research relates to how sporting practices and fitness cultures can be used as a social conduit through which marginalised communities as experience a sense of belonging and community. Her current expertise in sporting geographies and social inclusion is being applied to her Postdoctoral Research Fellow role working on an ARC Discovery Project titled 'Engaging Outsiders in Sport: Transforming Major Sport Event Legacy Planning Through a Co-Creation Approach'.

    The Paradox of Equity, Diversity and Inclusion in Paralympic Classification
    Presenter: Prof. Sean Tweedy

    During our Performance Priorities Lightening Round we will be discussing the balance between equity, inclusion and fair competition during our “Paradox of Equity, Diversity and Inclusion in Paralympic Classification” session. We are very fortunate to have Professor Sean Tweedy, the Principal Investigator for the International Paralympic Committee’s Classification Research and Development Centre (physical impairments) available to reflect on his decades long career developing best practice and evidence-based methods for allocating athletes to classes. Sean leads the Para Sport and Adapted Physical Activity Research Group in the School of Human Movement and Nutrition Sciences, University of Queensland and is a proud member of the Queensland Para Sport Network for Performance Enhancement and Applied Research board.

    Equity and Design Thinking in Technology Innovation for Improved Performance
    Presenters: Prof. Laurent Fossard and Matthew McShane

    Technology has unlimited potential to optimise performance – it also has the potential to create inequities due to issues with access, acceptability and affordability. During our Performance Priorities Lightening Round we will be discussing Equity and Design Thinking in Technology Innovation for Improved Performance. Tackling this important issue is Laurent Frossard and Matt McShane. Laurent is a bionic limbs scientist passionate about developing ground-breaking prosthetic solutions to improve life of individuals suffering from limb loss. Prof Frossard was the Sport Biomechanist for the Australian Para-athletic team between the Sydney 2000 and Beijing 2008 Paralympic games. Internationally recognised as independent expert, he approaches bionic solutions from an all-rounded perspective integrating prosthetic biomechanics, clinical benefits, service delivery and health economics. Matt is an Industrial Designer with a passion for co-designing technologies to improve the lives of individuals with a disability. He is an Australian Paralympian and World Champion with more than 8 years’ experience in elite sport.

    Creating Environments to Optimise Performance of Athletes with High Support Needs
    Presenters: Sharon Hill and Rachel Watson

    An individual’s environment can either be a positive and enabling force or a barrier for participation and performance. So how do we ensure an individual’s environment enables maximal participation, particularly for individuals with high support needs? Tackling this important issue is Sharon Hill. Sharon Hill is a volunteer who is passionate about driving the expansion of inclusive sport on the Sunshine Coast through Reverse Inclusion to encourage more social interaction between able-bodied people and those with disabilities. Sharon is a recipient of an Honorary Senior Fellow Award from the University of the Sunshine Coast for her dedication to inclusive sport. Sharon has tripled the Suncoast Spinners membership and created opportunities to employ people with disabilities for programs such as coaching local school children to play wheelchair basketball irrespective of their abilities.

    SAVE THE DATE

    Friday, 8 November 2024
    9 am–3.30 pm

    The symposium will be hosted online on Microsoft Teams.

    This is an accessible event with live captions. Auslan interpreting is available upon request.

    Register now: https://forms.office.com/r/LBHEY9iktm


    CONTACT US

    Inclusive Futures: Reimagining Disability
    inclusivefutures@griffith.edu.au

    Dr Kelly Clanchy
    Program Director – Bachelor of Clinical Exercise Physiology
    Griffith University
    k.clanchy@griffith.edu.au