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Check out the latest newsworthy and noteworthy things happening with Inclusive Futures, our partners and colleagues, and anything else you will need to know. We regularly add stories, grant opportunities, and announcements here. If you have something to share, please email inclusivefutures@griffith.edu.au

Check out the latest newsworthy and noteworthy things happening with Inclusive Futures, our partners and colleagues, and anything else you will need to know. We regularly add stories, grant opportunities, and announcements here. If you have something to share, please email inclusivefutures@griffith.edu.au

  • Inclusive Futures: Celebrating Cultural Wisdom and FASD Innovations with Aunty Lauraine Barlow, Cultural Steward and Research Advisor

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    Aunty Lauraine Barlow presents the FASD team with a very special painting 'ngabi wugu gabar' (many working arms). Pictured L-R: Prof. Dianne Shanley, Dr. Erinn Hawkins, Dr. Wei Liu, Aunty Lauraine Barlow, Dr. Leda Barnett and Prof. Elizabeth Kendall.

    This week, the Inclusive Futures: Reimagining Disability team welcomed Aunty Lauraine Barlow, Cultural Steward and Research Advisor to an afternoon tea in her honour, along with the amazing team of Fetal Alcohol Spectrum Disorder (FASD) researchers, led by Professor Dianne Shanley.

    The team, including Prof. Elizabeth Kendal, Director of Inclusive Futures: Reimagining Disability, together with Prof. Dianne Shanley, Dr. Leda Barnett, Dr. Wei Liu and Dr. Erinn Hawkins had a lovely afternoon with Aunty Lauraine, who presented us with a very special painting that represents inclusive futures.

    The FASD team have been working on a groundbreaking, no barriers new healthcare model – The Yapatjarrathati Projects. Find out more here: https://www.griffith.edu.au/research/impact/yapatjarrathati-projects


    Artist and Cultural Steward Aunty Lauraine Barlow

    ABOUT THE ARTIST

    Aunty Lauraine Barlow is a descendant of Mandingalpa Clan, Yidiny tribe and Rimanggudinhma Clan, Lama Lama tribe in North Queensland. Her Aboriginal name is Jana-n Mandingalbay / Jigiddirri Jigiddirri, which means “standout willy wagtail”. Recently, she was honoured with a third name, Buligud, which means Grandmother.

    Aunty Lauraine has experience of chronic illness and disability both personally and in her family members. She has always participated in research, but as more than a ‘subject’ of research. She is a community researcher who takes control of the way in which research is conducted so it remains respectful of her people and the land of her ancestors.

    She promotes the use of art as a medium for sharing healing stories. She is a healer herself, and has completed her qualifications as a Health Worker, a telephone counsellor, a community health promotion consultant and peer leader of self-management courses. She has helped hundreds of Indigenous women with illnesses and disabilities to regain their strength and culture.

    Aunty Lauraine has a long history with Griffith University, having first advised on a research project in 2003. Since that time, she has continued to support research projects and ensure that proper protocols are followed.

    Pictured L-R: Prof. Dr. Leda Barnett, Prof. Elizabeth Kendall, Aunty Lauraine Barlow, Dianne Shanley, Dr. Erinn Hawkins, and Dr. Wei Liu.

    ARTIST STATEMENT

    ngabi wugu gabar (Many working arms)

    Pronounced ngaa-bee woo-goo kubb-a from Yidinji Language

    This painting represents the research at Griffith Inclusive Futures and was painted to celebrate the commitment of the program to improving the lives of First Nations (and all Australian) people with disability.

    The four handprints mean ownership by energetic, clever and confident individuals with leadership skills who are dedicated to advancing knowledge. They signify story telling, gathering of stories and keeping them safe.

    The Ocyopus has eight arms that symbolise movement and pathways of energy.

    Each Octopus arm works independently of each other but also together. All researchers are walking and journeying together on the one path.

    The circles each consist of seven women and men all sitting together to reach positive solutions. They are great communicators, laying down weapons and sharing work tools. The circles represent the completeness that is reached through collaboration and agreement.

    The footprints travel in an anti-clockwise direction which means a place for rethinking, re-working ideas, revisiting, and recycling solutions.

    The octopus is an intelligent being that shines in all forms of thoughts, ideas, and dreams. It denotes authority, self-confidence, inner-strength, inner wisdom, and social status.

    The Octopus is a positive thinker, sincere, understanding, and spiritual. It has three hearts (all 3 are used for swimming but only 2 used for walking) meaning the Octopus has great love for humanity and desire for peace.

    The red tracks with white corals and foam represent the impact the Octopus has as it swims and walks around in the ocean. It leaves a foamy trail, especially when swimming fast.

    The single red mark is a mermaid’s purse which represents deep waters. Deep waters that are not yet fully understood attract the attention of this inquisitive being.


    Professor Elizabeth Kendall (Director - Inclusive Futures: Reimagining Disability) and Aunty Lauraine Barlow (Cultural Steward and Research Advisor.

    CONTACT

    Aunty Lauraine J. Barlow JP (Qual)
    Jana-n Mandingalbay / Jigiddirri Jigiddirri Bulugud

    Elder, Aboriginal Steward and Knowledge Bearer
    Cultural Weaver, Story and Cultural Space Feeler

    +61 0488 121 686 | gnullbin@yahoo.com.au

    or email inclusivefutures@griffith.edu.au

  • Meaningful Employment for People with Disability in Queensland

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    Meaningful Employment for People with Disability in Queensland (Final Report)

    Project Aims
    The Department of Seniors, Disability Services and Aboriginal and Torres Strait Islander Partnerships (DSDSATSIP) requested a high-level proposal to examine employment experiences of people with disability in Queensland.

    A group of diverse people in a professional office collaborating on a work project. Some individuals hold up papers to share whilst others have a laptop in their lap.

    The project aimed to identify insights unique to Queensland and provide evidence that could improve experiences of people with disability (both with and without NDIS funding) in relation to employment. Specifically, the project:

    • Investigated employment experiences of people with disability in Queensland (formal, unpaid and supported);
    • Explored the nature of financial security for Queenslanders with disability;
    • Examined the drivers for satisfaction or dissatisfaction for those who have, or have previously had, employment and the challenges to success in employment; and
    • Explored employment and work aspirations, including preferred career pathways, hours of work and locations.

    This project was conducted in three phases:

    • Phase 1: Literature review and statistical analysis;
    • Phase 2: Project Co-development;
    • Phase 3: Data collection and analysis by Citizen Scientists.

    Visit the Project page on the Inclusive Futures Hub.

    The Final Report contains the findings from the qualitative and quantitative data collection with citizen scientists, including strategies on how to improve meaningful employment for people with disability.

    Infographic displaying the findings of the report. Age Range: 18-70, Average age was 43. Highest level of education - PhD or higher doctoral degree 1.6%, Masters Degree 6.3%, Bachelors Degree 28.1%, Year 12 or Certificate 18%, Diploma, Adv. Diploma or Associate Degree 15.6%, Certificate, trade or under year 12 12.5%. Employment Currently employed 70.3%, Not currently employed 29.7%, Employed full time 25.6%, Employed casually 20.9%, Employed part-time 18.6%, Self Employed 20.9%. Gender - Female 35 (54.7%), Male 7 (42.2%), Non Binary 2 (3.1%), First Australian - No 93.8%, Aboriginal 4.7%, Aboriginal and TSI 1.6%. LGBTIQA - Yes 7.8%, No 87.5%, Prefer not to say 4.7%. First Language - English 96.9%, Language other than English 3.1%. Country of Birth - Overseas in a country where English is the main language 14.1%, overseas in a country where English is not the first language 0%, Australia 85.9%.

    Summary of the findings
    Meaningful employment for people with disability necessitates workplaces that foster growth, autonomy, flexibility, support, safety, and dignity. However, current practices often fall short of meeting these essential criteria, as highlighted in our study on disability employment in Queensland. Barriers to employment persist throughout individuals' lives, particularly for those with developmental disability or acquired disability later in life. These barriers encompass various stages of the employment process and require tailored interventions, including improved training and support during education, enhanced transition programs, and better accessibility in recruitment and workplace accommodations. Moreover, there's a pressing need to address misconceptions and stigma surrounding disability, foster inclusive workplaces, and provide education and resources for both employers and employees.

    Efforts to improve disability employment outcomes must prioritise meaningful work and acknowledge the diverse needs and abilities of individuals with disability. This involves empowering individuals through self-employment opportunities, promoting inclusive practices in the workforce, and advocating for policy changes to address financial disincentives and support mechanisms. Collaboration among stakeholders, including citizen scientists and diverse disability groups, is essential for developing comprehensive strategies that address systemic challenges and harness the strengths and contributions of people with disability in the workforce. Ultimately, a concerted effort to reshape attitudes, practices, and policies is vital to creating a more inclusive and supportive environment for disability employment in Queensland and beyond.

    The Final Report can be found on this link: https://doi.org/10.25904/1912/5090

    Authors

    Mowbray, Paula K
    Kendall, Elizabeth
    Chapman, Kelsey
    Khan, Maria
    Allen, Connie
    Berridge, Mark

    Published by
    Inclusive Futures: Reimagining Disability, Griffith University

    Please contact Dr. Paula Mowbray for further information:

    Phone: (07) 3735 4708
    Email: p.mowbray@griffith.edu.au

    Griffith University Ethics Approval: 2022/894

  • Unlocking Inclusive Futures Through Diverse Voices

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    Unlocking Inclusive Futures through Diverse Voices

    Embrace the Power of Inclusivity

    In a world striving for progress, true innovation comes from hearing and embracing diversity in all its forms.

    We proudly present Inclusive Voices, a pioneering force driving forward inclusive thinking in community, in business and in government.

    Our vibrant community of over 500 people with lived experience of disability, supported by decades of cutting-edge disability research, makes us the premier destination for corporations and governments seeking transformative disability-centric change.

    Dr Vanesa Bochkezanian (CQU), Dwayne Fernandes, Dr Maretta Mann (Griffith University), and Timothy Lachlan address the audience at the Inclusivity In Play Pitch, 2022.Dr Vanesa Bochkezanian (CQU), Dwayne Fernandes, Dr Maretta Mann (Griffith University), and Timothy Lachlan address the audience at the Inclusivity In Play Pitch, 2022.

    Why Inclusive Voices?

    The Numbers Don't Lie

    With over 4 million Australians living with disability, representing 18% of our population, and even more people living with chronic disabling conditions, the potential for meaningful engagement and collaboration is vast.

    Yet, the knowledge of people with disability remains vastly untapped by industry, offering us huge possibilities for creativity, and unparalleled insights waiting to be unlocked.

    Our Unique Approach

    We bring together a dynamic alliance:

    People with Disability: Our thriving community of 500+ individuals, each with a unique journey and invaluable perspective on disability.

    Researchers, Designers, and Educators: Experts who understand the transformative power of collaboration and empathy.

    Industry and Government Bodies: Partners dedicated to fostering a more inclusive society through meaningful action.

    What We Offer

    Personalised Consultations: Gain invaluable insights through one-on-one sessions with people with lived experiences or immersive focus groups, where our community members offer first-hand perspectives and innovative solutions.

    Captivating Keynotes and Workshops: Let our Inclusive Voices speaking bureau inspire and educate with their compelling stories, experiences of using your products and services, shedding light on the true essence of disability and its implications for your organisation.

    Product and Service Enhancement and Testings: Collaborate with our experts to refine your offerings, ensuring they meet the diverse needs of all individuals and drive meaningful impact.

    Research Collaborations: Dive into, or commission, ground-breaking studies conducted by our researchers, bridging theory and practice to shape a more inclusive future for all.

    A montage of images from the Inclusivity in Play Pitch, 2022 featuring diverse people and speakers with disability.Inclusivity in Play Pitch, 2022 Top L to R: Kathleen O'Kelly-Kennedy and Dr Kerry Hall; Dwayne Fernandes an Sara Shams
    Bottom L to R: Timothy Lachlan; Timothy Lachlan, Dr Maretta Mann, Dwayne Fernandes and Dr Vanesa Bochkezanian.


    Why Choose Inclusive Voices?

    Unprecedented Access: We've streamlined the process, providing seamless access to our vibrant and unique community.

    A Fresh Perspective: Shift your paradigm and see disability not as a limitation, but as a source of boundless creativity and resilience, inspiring innovative solutions.

    Transformative Impact: By embracing inclusivity, you'll not only meet compliance standards but also unlock new avenues for innovation and growth, benefiting all of society.


    A montage of images of Inclusive Futures events: From Left to Right - Madi de Rozario OAM and Daniel Clarke OAM; Julia Robertson, Matt Levy OAM and Mark Berridge at the Inclusive Futures Book Club Author Talk; Inclusivity in Play Pitch; Geoff Trappett; Geoff Trappett and Karin Swift at the Disability Reform Summit 2024.A montage of images of Inclusive Futures events: From Left to Right - Madi de Rozario OAM and Daniel Clarke OAM at the Inclusivity In Play Pitch; Julia Robertson, Matt Levy OAM and Mark Berridge at the Inclusive Futures Book Club Author Talk; Audience at the Inclusivity in Play Pitch; Geoff Trappett; Geoff Trappett and Karin Swift at the Disability Reform Summit 2024.

    Join Us

    As the leading force in Australian disability research, Griffith University is committed to and backs Inclusive Voices.

    Visit Griffith Inclusive Futures to learn more about ground-breaking disability research. Join us on a journey where inclusion isn't just a buzzword—it's a way of life.

    Together, let's build a future where everyone thrives by harnessing the power of each person’s unique abilities.

    Unlock Inclusive Futures. Transform Lives.


    Contact Us

    Inclusive Futures: Reimagining Disability

    Email: inclusivefutures@griffith.edu.au

    Website: https://www.griffith.edu.au/research/inclusive-futures-reimagining-disability

    Inclusive Futures Hub: https://inclusivefutures.griffith.edu.au

    Follow Us

    LinkedIn: https://www.linkedin.com/showcase/inclusive-futures-reimagining-disability

    Twitter/X: https://twitter.com/gu_incl_futures

    YouTube: https://www.youtube.com/channel/UChdzCWo_9R8XHDadRRVPnkw

    Become an Inclusive Futures Member

    https://shorturl.at/huDHQ

  • Disability Inclusion Author Talk Series Mary Li and Sophie – Navigating Hearing Loss

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    A montage of images of the Mary Li Author talk together with Dr. Maretta Mann. Mary is a middle aged woman with a brown curly bob hair style. She wears a blue and teal long sleeve midi dress and holds a microphone as she addresses the audience. Dr. Mann is a young middle age woman with straight brown bob hair parted in the middle. She is wearing white wide three quarter length pants and a brown t-shirt with joggers. In other images Mary Li's novel "Mary's Last Dance" is shown which has Mary and husband Li on the cover.Mary Li together with Inclusive Futures Book Club and Author Talk host Dr. Maretta Mann

    On Wednesday, April 3, 2024, the Inclusive Futures Book Club hosted author Mary Li for an insightful conversation with Dr. Maretta Mann. The discussion delved into Mary’s remarkable dancing career, her marriage to Li Cunxin AO, and the challenges faced by her daughter, Sophie, who was diagnosed as profoundly deaf at 17 months. They explored career decisions, the absence of role models, and the complexities of education and social interactions. Mary and Sophie’s journey, navigating both the hearing and deaf worlds, provided a powerful narrative of resilience and adaptation.

    Mary Li speaks to the audience in the Inclusive Futures Author Talk hosted by Dr Maretta MannAuthor Mary Li and Inclusive Futures Author Talk host Dr. Maretta Mann
    An Unlikely Beginning

    Mary Li’s memoir traces her journey from Rockhampton, Australia, where she grew up as Mary McKendry—one of eight children. Despite an unconventional start, Mary’s innate musicality drew her to ballet. She recalls, “The minute I walked into the studio at eight years old, and I could hear the music, I was lifted to another world.” Her teacher recognised her potential, leading to an invitation to the Royal Ballet School in London at age 16.



    Mary Li and her dance partner and husband Li Cunxin OAM dance Swan LakeMary Li and her dance partner and husband Li Cunxin OAM dance Swan Lake

    Mary’s Dancing Career

    Mary joined the London Festival Ballet (now the English National Ballet) in 1977. As she ascended the ranks, she danced principal roles in classical ballets, collaborated with renowned choreographers, and performed on international stages. One of many highlights was visiting China in the early 1980s—a ground-breaking experience.

    A Shocking Diagnosis

    In 1989, Mary Li and her husband, Li Cunxin AO, welcomed their daughter, Sophie. Newborn hearing screening wasn’t routine then, but after noticing Sophie’s lack of reaction to a popping balloon, they booked a hearing test. The diagnosis—profound deafness—shocked them both. Mary immediately thought of Helen Keller’s experience. Despite advancements, the shock remains significant for parents. Mary made an early decision: she would give up her dancing career to ensure Sophie had equal opportunities.

    Finding a Way for Sophie

    Mary described that at the time (1990s) there was no internet, and no role models in her life that would help parents to support their deaf children. Sign language was not really presented as a viable option. She fortunately met one wonderful speech therapist who also had a child with disability. “She was the one that looked at me in the room and said “you know, you can help her”… she was amazing.” But healthcare and support weren’t coordinated, and parents had to find their own way.

    Challenging Social Situations

    In social situations, Mary faced challenges related to her daughter Sophie’s hearing loss. At a Mother’s Group, comparing Sophie’s speech development with other children highlighted the differences. Sophie missed social conversations without Mary as her interpreter. Birthday celebrations were exhausting, but a thoughtful friend organised a small party for Sophie. As Sophie entered her teenage years, group situations became even more difficult—never being privy to secrets and missing out on conversations affected her confidence profoundly.

    Mother as Teacher

    Mary took every opportunity to teach Sophie to speak. “Even in the bath tub I put on her hearing aids because she was still… Instead of making individual lessons I just talked all day about everything that was around me.” She spoke about a revelation when Sophie was about four years old that she would need to teach Sophie how to think, because this is very difficult to do without the language. This is when she decided to investigate a cochlear implant.

    Navigating School and University

    Mary shared the difficulty in finding a good school for Sophie. She tried out a specialist school for deaf children, and mainstream schools (in both Australia and the USA). She wanted Sophie to have a good education but also for Sophie to experience social situations. None of the school experiences were perfect. Later Sophie went to university, and that presented challenges as well. Even if there were Auslan (Australian Sign Language) interpreters, sometimes they wouldn’t be available for particular classes.

    Sophie and Dancing

    Mary spoke about the benefits that Sophie has had from doing dancing. First, it was a new opportunity, and this extended Sophie’s opportunity to learn new words from being immersed in different situations. She said that when you have a hearing-impaired child you worry about background noise, so basketball is out. But in a ballet studio the children have to be quiet and listen to the teacher. So, in a way Sophie was having speech therapy without knowing it. Interestingly, she was also very expressive and musical. She ended up doing a year 12 dance, and she was one of the top 5% in the state. She was particularly good at tap dancing, and Mary said this is a great form of dance for Deaf children.

    Cochlear Implants: A Dual Perspective

    Mary acknowledges that cochlear implants have significantly transformed Sophie’s life, but they come with limitations. Sophie now communicates using Auslan and benefits from the implants, straddling both the hearing and deaf worlds. However, Sophie’s first implant failed due to a software glitch, leading to a second surgery after 26 years.

    Sophie’s reality remains unchanged—she goes to bed deaf and wakes up the same way. Yet, the implant acts as a powerful tool, akin to putting on glasses.

    Nowadays, in her mentoring role, Sophie emphasises confidence-building. Many individuals with implants or hearing loss struggle with confidence, but Sophie guides them toward reclaiming it. Whether in the workforce or daily life, she empowers others to overcome barriers and find their voice.

    Where is Sophie Now?

    Mary told us a bit about what Sophie has been doing since her book was published in 2020. Amongst many exciting developments, Sophie has invented a subscription-based global online signing dictionary called Sign How, as well as a signing app.

    Resources:

    · To read the full story, purchase Mary’s Last Dance by Mary Li online.

    · Learn about Sophie’s Sign How dictionary.

    This condensed account was written by Dr Maretta Mann, Strategic Development Manager, and host of the Book Club at Inclusive Futures: Reimagining Disability. Dr Maretta Mann together with author Mary LiDr Maretta Mann and Mary Li

  • Brain Awareness Week

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    Opening graphic for Brain Awareness Week, with two vector characters, one is a female nurse with a magnifying glass and the other a male holding his hands up toward his head with lightening symbols - implying pain. Branding on this graphic is Griffith University Inclusive Futures: Reimagining Disability and The Hopkins Centre.

    Brain Awareness Week (11-15 March), initiated by the Brain Foundation, is a time when we encourage you to think more about your brain health and help raise awareness for brain diseases, disorders and injuries, including brain tumours.

    Every day in Australia, six people are diagnosed with a brain tumour and four will die. Brain tumour is a complex illness with the combined effects of cancer and brain injury. People with brain tumour and their families experience considerable distress related to the diagnosis, threat to life and changes in the person’s abilities and lifestyle.


    Brain Awareness Week (text in the caption). Accompanying vector graphic is of a brain with multiple medical professionals on ladders and with magnifying glasses and laptops studying its interior.


    Research led by Professor Tamara Ownsworth from Griffith University demonstrated the positive impact of the telehealth Making Sense of Brain Tumour (Tele-MAST) for improving mental health and quality of life of individuals with brain tumour, as the well as the potential for this program to ease the financial burden on the healthcare system . Tele-MAST is now being adopted by the Cancer Council Queensland as the statewide model of psychosocial support for people with brain tumour and their families.

    Telehealth Making Sense of Brain Tumour (Tele-MAST). Text in caption / website URL. Vector graphic of a cartoon style man holding an overside magnifying glass up towards a brain shape.

    Griffith University researchers (Professor Tamara Ownsworth, Dr Kasia Lion and Julia Robertson) are now collaborating with Metro South Health (Radiation Oncology, Princess Alexandra Hospital), The Mark Hughes Foundation and Peace of Mind Foundation to tackle further challenges faced by people with brain tumour and their families.

    Funded by the Mark Hughes Foundation Centre for Brain Cancer, the first project partners with people with brain tumour and family members to develop and trial a communication and emotional support skills training program for medical, nursing, and allied health professionals working with people with brain tumour and their families.

    "There was nothing but a cold hard clinical diagnosis....no offer of pre-surgery counselling to deal with the human side of it....we were left swinging pretty wildly in the wind.” (Ownsworth et al., 2011, p. 129)

    "There was not in but a cold hard clinical diagnosis... no offer of pre-surgery counselling to deal with the human side of it... we were left swinging pretty wildly in the wind" (Ownsworth et al., 2011, p. 129). Vector graphic of a blond cartoon style figure with a brain shape with a chain, shackled to her leg.

    Health professionals' (HPs) approach to communicating the diagnosis, prognosis and treatment, and response to questions and distress has an immeasurable impact on the emotional wellbeing of people with a brain tumour and their family members. HPs report gaps in their knowledge and skills and often lack confidence with communication and providing emotional support. In the first phase, we will seek input from consumers and HPs on the focus and approach to training with a view to understanding the priority areas to include in training programs and optimal approach (i.e., what and how to train HPs). For the second phase, we will focus on evaluating the impact of this training on HPs' knowledge, skills and confidence.

    The second project is funded by the Metro South Health Research Support Scheme and aims to co-design and pilot a multimedia educational platform specific to the needs of people with benign brain tumour and lower-grade glioma

    “We just wish that someone would have said to us right at the beginning here’s a very good guide, because when you have a brain tumour situation, oh you’re lost” (Ownsworth et al., 2015, p.7-18).

    Graphic of a happy face and a sad face. Quote: " We just wish that someone would have said to us right at the beginning, here's a very good guide, because when you have a brain tumour situation, oh you're lost." (Ownsworth et al., 2015, p.7-18).

    Benign or non-malignant brain tumours account for 70% of all brain and other CNS tumours. Yet, the information and support needs of this group are frequently overlooked despite them experiencing similar levels of distress and everyday impacts to those with malignant brain tumour. This project aims to improve people’s ability to find, understand and use information about brain tumour and share this knowledge with their support networks. In partnership with consumers and multidisciplinary healthcare providers, the project will result in new online resources that can be rapidly taken up in practice to improve the quality service provision and continuity of care for this population.

    Professor Tamara Ownsworth, Research Director (Research Development) at The Hopkins Centre, Griffith University, is a clinical neuropsychologist with more than 25-years’ experience in rehabilitation and psychosocial intervention for people with acquired brain injury, including traumatic brain injury, brain tumour, stroke and dementia.

    More about Enhancing quality of life for brain tumour survivors: https://news.griffith.edu.au/2023/07/25/enhancing-quality-of-life-for-brain-tumour-survivors/

    Find out more about Brain Awareness Week: https://brainfoundation.org.au/brain-awareness-week/

    [TO1]Can this say ‘….burden on the healthcare system’


    More Information - Prof. Tamara Ownsworth, Research Director, The Hopkins Centre. Email: t.ownsworth@grifith.edu.au.


  • Humanising Healthcare: A Futurist's Perspective on Disability and Pharmacies

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    A montage of images from APP 2024 including Morris Misel, Prof. Elizabeth Kendall, Julia Robertson, Julie Rogan and Dr. Chris Edwards.

    Last Friday at APP 2024 the Australian Pharmacy Professional's Annual Conference on the Gold Coast, Morris Misel had the privilege of chairing a powerful panel discussion on disability and community pharmacists.

    These conversations are critical to shaping the future of healthcare, and this session was a shining example of why.

    The panel, drawn from Griffith University's Inclusive Futures: Reimagining Disability community (a network of 500+ incredible individuals with lived experience of disability), featured Dr Chris Edwards, Julia Robertson and Julie Rogan each sharing their unique perspective on navigating community pharmacies.

    From sensory overload for individuals with autism to medication delays due to unnecessary concerns, their stories highlighted the importance of human connection in healthcare.

    When pharmacists took the time to understand their needs, the experience was positive. When communication faltered, frustration arose.

    The best part? The audience, both in-person and online, fostered a fantastic atmosphere of acceptance. Pharmacists felt comfortable asking insightful questions and the panellists were thrilled to share their experiences.

    Honest dialogue, where everyone is heard without fear of offense, is the cornerstone of progress.

    Here's the exciting part: APP offered practical solutions!

    From government programs allowing for more pharmacist-patient interaction to readily implemented processes, there are tangible steps we can take today.

    The Takeaway: Disability Impacts Everyone

    Disability affects 1 in 4 Australians, if you include those with chronic pain, as well as carers & families the figure jumps to 7 in 10 Australians are directly impacted by disability.

    Imagine if any other business ignored such a significant, loyal customer base?

    Pharmacies have a golden opportunity to improve access and care for a vast demographic.

    By listening to the voices of lived experience, we will create a more inclusive and effective healthcare system for all.

    Ready to Start a Conversation?

    If you're looking to integrate lived experience disability voices into your industry or business, we can help! Whether it's a chat, panel discussion, keynote address, or strategy workshop, let's create impactful conversations that pave the way for a more inclusive future.

    A huge thank you to #APP24 for providing a platform for this crucial conversation, and to Dr. Chris Edwards, Julia Robertson, and Julie Rogan for bravely sharing their stories and insights. Your openness paves the way for a more understanding and inclusive healthcare system!

    Video and Transcript
    If you missed this exciting Guild APP panel session, view the video recording on our Inclusive Futures YouTube Account here. A written transcript is also available, please contact j.kek-pamenter@griffith.edu.au or inclusivefutures@griffith.edu.au for an accessible copy.

  • Inclusive Futures Author Talk Series: Matt Levy OAM PLY "Going the Distance: Identify and create your own lane to success"

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    Disability Inclusion Author Talk Series: With guest speaker, Matt Levy OAM PLY Paralympian and author of ‘Going the Distance: Identify and create your own lane to success’. Hosted by Dr Maretta Mann.

    Matt Levy OAM PLY with Dr. Maretta MannMatt Levy OAM PLY with Dr. Maretta Mann

    Last Tuesday, 27 February, Griffith Inclusive Futures: Reimagining Disability hosted esteemed guest Matt Levy OAM PLY, Australian Paralympian and author of “Going the Distance”.

    In his talk, Matt shared his life journey, marked by early challenges due to being born prematurely with cerebral palsy, and emphasised the transformative role of swimming therapy in overcoming his physical limitations. Matt also discussed the impact of cerebral palsy on his daily life, highlighting the importance of recognising that disabilities affect individuals differently.

    A montage of images. From top left to right: Matt Levy OAM; Julia Robertson together with Matt Levy and Mark Berridge; Attendees at the Author Talk held at Nathan Campus, Griffith University.From top left to right: Matt Levy OAM; Julia Robertson together with Matt Levy and Mark Berridge; Attendees at the Author Talk held at Nathan Campus, Griffith University.

    Matt has developed a framework based on his experiences. He stressed the significance of setting manageable goals, driven by passion and belief. He told us the story of where it all started for him, when he was left behind at the pool after the school swimming carnival. He found a way to navigate across Sydney via public transport to get home that took him over three hours and it taught him a crucial lesson in goal-setting.

    Matt also detailed his remarkable achievements, participating in five Paralympic Games, emphasising that the journey and the learning experiences matter more than the accolades. Matt also reflected on a pivotal moment during the 2008 Paralympic Games when he realised the need for a change in attitude and commitment to continuous improvement.

    He delved into the importance of having a dream, a desire, and creating tools for success. Matt shared the necessity of focusing on the purpose behind one's actions, particularly during challenging days, and encouraged attendees to make the most out of every moment, whether positive or negative.

    Matt introduced his ‘action plan’, breaking down big goals into smaller, manageable steps, and underscored the importance of simplicity and a focused approach in achieving success, drawing parallels between his training sessions and broader life goals.

    Matt also emphasied the role of a supportive team, including family, friends, colleagues, and coaches, in personal growth., and highlighted the significance of engaging with one's inner circle through meaningful conversations, collaborations, and shared experiences.

    Wapping up a most impactful Author Talk, Matt concluded by stressing the value of lifting each other higher and turning negatives into positives through supportive relationships.

    I was so inspired by Matt, who has achieved so much success by following a process of setting goals and then working towards them, and also of approaching the setbacks or disappointments as an opportunity for reflection, learning and growth.

    Matt also encouraged others not to compare themselves with others, but to follow one’s own path.

    I think everyone in the room left feeling encouraged by Matt’s practical and inspiring approach to reaching your potential.

    A montage of photos from the author talk event at Nathan campus. From top left to right: Prof. David Thiel; Cathy Easte, Tara Horner and Matt Levy OAM PLY, Captioner Roxane Lane; and Nathaniel Audley, Tara Horner, Maureen Sullivan and Mark Berridge.From top left to right: Prof. David Thiel; Cathy Easte, Tara Horner and Matt Levy OAM PLY, Captioner Roxane Lane; and Nathaniel Audley, Tara Horner, Maureen Sullivan and Mark Berridge.


    TRANSCRIPT:

    If you wish to obtain a transcript of Matt’s keynote talk, please email the Inclusive Futures: Reimagining team at: inclusivefutures@griffith.edu.au

    UPCOMING EVENTS:

    Our next Author Talk guest is the highly esteemed Mary Li – Principal Repetiteur and Ballet Mistress with the Queensland Ballet and author of “Mary’s Last Dance”, to be held on Wednesday, 3 April 11.30am-1.30pm, at the Queensland Conservatorium (QCGU) Foyer, SO1, Southbank Campus, Griffith University.

    Register for this FREE and inclusive event on this link: https://shorturl.at/JOV46



  • Unlocking the Game to ‘Count Her In’: A Thought-Provoking Conversation on International Women's Day

    Share Unlocking the Game to ‘Count Her In’: A Thought-Provoking Conversation on International Women's Day on Facebook Share Unlocking the Game to ‘Count Her In’: A Thought-Provoking Conversation on International Women's Day on Twitter Share Unlocking the Game to ‘Count Her In’: A Thought-Provoking Conversation on International Women's Day on Linkedin Email Unlocking the Game to ‘Count Her In’: A Thought-Provoking Conversation on International Women's Day link
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    Join us as experts from Griffith University’s Sport and Gender Equity (SaGE) team delve into the critical aspects of investing in women's sports, exploring transforming policy frameworks, gender budgeting, and the transformative power of research.

    From dismantling stereotypes to ensuring inclusivity for women with disability, this conversation values intersectional thinking and diverse meanings of ‘sport’ to go beyond the scoreline. Our Griffith feminist sport researchers offer insights into reshaping the narrative and fostering greater equity in the world of sport on and off the field.

    Guest Speakers:

    Professor Simone Fullagar
    – Inclusive Futures: Reimagining Disability “Inclusive Play” Theme Lead
    https://experts.griffith.edu.au/19065-simone-fullagar

    Associate Professor Adele Pavlidis
    https://experts.griffith.edu.au/7436-adele-pavlidis

    Dr Diti Bhattacharya
    https://experts.griffith.edu.au/10229-diti-bhattacharya

    Dr Georgia Munro-Cook
    https://experts.griffith.edu.au/38757-georgia-munrocook

    Visit the SAGE Website
    https://www.griffith.edu.au/griffith-business-school/department-tourism-sport-hotel-management/sage-at-griffith

    Video link: https://youtu.be/c1IZadlE_tE


    Acknowledgement of Country:

    Griffith University acknowledges the people who are the traditional custodians of the land and pays respect to the Elders, past and present, and extends that respect to other Aboriginal and Torres Strait Islander peoples. South Bank, Nathan and Mount Gravatt campuses are situated on the land of the Yugarabul, Yuggera, Jagera and Turrbal peoples. Logan is situated on the land of the Yuggera, Turrbal, Yugarabul, Jagera and Yugambeh peoples. The Gold Coast is situated on the land of the Yugambeh/Kombumerri peoples.

  • Voice of Queenslanders with Disability Survey - Queenslanders with Disability Network

    Share Voice of Queenslanders with Disability Survey - Queenslanders with Disability Network on Facebook Share Voice of Queenslanders with Disability Survey - Queenslanders with Disability Network on Twitter Share Voice of Queenslanders with Disability Survey - Queenslanders with Disability Network on Linkedin Email Voice of Queenslanders with Disability Survey - Queenslanders with Disability Network link
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    Author: Monique Mita

    Queenslanders with disability are encouraged to have their say on what it’s like to live in the sunshine state with the release of the 2024 Voice of Queenslanders with Disability survey.

    “The 2023 survey had great impact on policy and planning in Queensland,” said Chief Investigator and Research Fellow with Inclusive Futures and the Hopkins Centre, Kelsey Chapman.

    “The 2024 Voice of Queenslanders survey will give us keen insight into how the lives of Queenslanders with disability, their families and the people who support them have changed since last year.”

    Griffith University Inclusive Futures: Reimagining Disability have been working with Queenslanders with Disability Network (QDN) to collect the information and deliver the annual survey results.

    “We’re looking forward to generating and collecting more stories and partnering with the Queensland Government and QDN to build a more inclusive state for people with disability,” she said.

    "The 2023 was a landmark in Australian disability policy and reform, and we are looking forward to understanding how this impacted the lives of Queenslanders with disability, their family and the people who support them.

    “We will be paying special attention to comparing this year’s data with last year to identify key trends."

    Visit the Voice of Queenslanders with Disability Survey on the link below:
    https://qdn.org.au/voice-of-queenslanders-with-disability-survey/

    You can take the survey that is right for you!
    https://inclusivefutures.griffith.edu.au/hub-page/vqd

  • Dylan Alcott Foundation Scholarship

    Share Dylan Alcott Foundation Scholarship on Facebook Share Dylan Alcott Foundation Scholarship on Twitter Share Dylan Alcott Foundation Scholarship on Linkedin Email Dylan Alcott Foundation Scholarship link
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    Paralympian and Scholarship philanthropist Dylan Alcott on stage addressing a live audience.


    Griffith’s Inclusive Futures: Reimagining Disability together with the Dylan Alcott Foundation is proud to announce the Dylan Alcott Foundation Scholarship for commencing undergraduate students with disability.

    The Dylan Alcott Foundation Scholarship provides up to AUD $40,000 ($10,000 per annum) to support a commencing student (Australian Citizen or Australian Permanent Resident), studying an undergraduate program at Griffith University.

    This scholarship is available for students who are registered with Griffith University Student Disability and Accessibility support services and demonstrate educational disadvantage.

    Scholarship Details:

    https://www.griffith.edu.au/scholarships/scholarship-listings/dylan-alcott-foundation-scholarship

    Apply by 4pm, Monday 15 April 2024.

    About the Dylan Alcott Foundation:

    The Dylan Alcott Foundation is committed to helping young Australians with disability overcome the barriers of entry to sport and education by providing fundraising for grants, scholarships and mentoring.

    Their fundraising efforts help to achieve big dreams through tangible means, purchasing expensive and much-needed sporting equipment, and providing scholarships at leading education institutions, and mentoring programs with industry trailblazers.

    Having a core focus on enriching the lives of young people with disabilities by eliminating the barriers of entry to get involved in sport and study, the Dylan Alcott Foundation harnesses the energy and capabilities of their people to empower positive change for our community. The Dylan Alcott Foundation knows their people perform best when they feel valued, happy, healthy and encouraged to bring their whole and authentic self to their studies and work every day.


    For more information contact:

    Griffith Scholarships Office
    Phone: 07 3735 7974
    Email: scholarships@griffith.edu.au

    Apply via the scholarship application process: https://www.griffith.edu.au/scholarships/before-you-apply


Page last updated: 15 May 2024, 01:28 PM