Category Inclusive Futures Book Club Show all
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Disability Inclusion Author Talk Series: Dr Sarah Brooker
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INCLUSIVE FUTURES BOOK CLUB
A Conversation with Dr Sarah Brooker - Neuroscientist, teacher and author of My Lucky Stroke.
Inclusive Futures: Reimagining Disability invites you to attend our Author Talk with esteemed guest Dr Sarah Brooker (author of My Lucky Stroke), hosted by Dr Maretta Mann.
In 2002 Sarah Brooker was only 20 years old and on the brink of realising her dreams. She had graduated from Monash University and was about to become a neuroscientist. Then, a series of catastrophic events – a stroke, a car accident, a coma – and she was robbed of that life forever.
I woke up in her place. I was a broken body, with little memory of who I had been, and little understanding of the world I was in. I have spent the past 22 years trying to put my life back together. In that time, I have had to learn to walk, talk, and eat again. That was easy.
I have completed several University degrees, including returning to Neuroscience to complete my PhD. That was easy too. What has been difficult has been learning and re-learning my place in the world, and what it means to live with an acquired brain injury.
I have been a rehabilitation counsellor, a radio DJ, a student support officer and have finally found my place as a teacher. I am Dr Sarah Brooker and I have come along today to share the story of my recovery with you.
Find out more about Dr Sarah Brooker and her book “My Lucky Stroke” here.
EVENT DETAILSTuesday, 13 August 2024
12 noon–1 pm AEST | 11.30 am–12.30 pm ACST
This online event will be hosted on Microsoft Teams. A meeting link will be shared with you upon registration.RSVP
Please register your attendance before Thursday, 9 August here or via the QR code.
MORE INFORMATION
inclusivefutures@griffith.edu.auTHIS WILL BE AN ACCESSIBLE EVENT WITH LIVE CAPTIONS AND A TRANSCRIPT AVAILABLE POST EVENT.
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Disability Inclusion Author Talk Series Mary Li and Sophie – Navigating Hearing Loss
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Mary Li together with Inclusive Futures Book Club and Author Talk host Dr. Maretta MannOn Wednesday, April 3, 2024, the Inclusive Futures Book Club hosted author Mary Li for an insightful conversation with Dr. Maretta Mann. The discussion delved into Mary’s remarkable dancing career, her marriage to Li Cunxin AO, and the challenges faced by her daughter, Sophie, who was diagnosed as profoundly deaf at 17 months. They explored career decisions, the absence of role models, and the complexities of education and social interactions. Mary and Sophie’s journey, navigating both the hearing and deaf worlds, provided a powerful narrative of resilience and adaptation.
An Unlikely Beginning
Author Mary Li and Inclusive Futures Author Talk host Dr. Maretta Mann Mary Li’s memoir traces her journey from Rockhampton, Australia, where she grew up as Mary McKendry—one of eight children. Despite an unconventional start, Mary’s innate musicality drew her to ballet. She recalls, “The minute I walked into the studio at eight years old, and I could hear the music, I was lifted to another world.” Her teacher recognised her potential, leading to an invitation to the Royal Ballet School in London at age 16.
Mary Li and her dance partner and husband Li Cunxin OAM dance Swan Lake Mary’s Dancing Career
Mary joined the London Festival Ballet (now the English National Ballet) in 1977. As she ascended the ranks, she danced principal roles in classical ballets, collaborated with renowned choreographers, and performed on international stages. One of many highlights was visiting China in the early 1980s—a ground-breaking experience.
A Shocking Diagnosis
In 1989, Mary Li and her husband, Li Cunxin AO, welcomed their daughter, Sophie. Newborn hearing screening wasn’t routine then, but after noticing Sophie’s lack of reaction to a popping balloon, they booked a hearing test. The diagnosis—profound deafness—shocked them both. Mary immediately thought of Helen Keller’s experience. Despite advancements, the shock remains significant for parents. Mary made an early decision: she would give up her dancing career to ensure Sophie had equal opportunities.
Finding a Way for Sophie
Mary described that at the time (1990s) there was no internet, and no role models in her life that would help parents to support their deaf children. Sign language was not really presented as a viable option. She fortunately met one wonderful speech therapist who also had a child with disability. “She was the one that looked at me in the room and said “you know, you can help her”… she was amazing.” But healthcare and support weren’t coordinated, and parents had to find their own way.
Challenging Social Situations
In social situations, Mary faced challenges related to her daughter Sophie’s hearing loss. At a Mother’s Group, comparing Sophie’s speech development with other children highlighted the differences. Sophie missed social conversations without Mary as her interpreter. Birthday celebrations were exhausting, but a thoughtful friend organised a small party for Sophie. As Sophie entered her teenage years, group situations became even more difficult—never being privy to secrets and missing out on conversations affected her confidence profoundly.
Mother as Teacher
Mary took every opportunity to teach Sophie to speak. “Even in the bath tub I put on her hearing aids because she was still… Instead of making individual lessons I just talked all day about everything that was around me.” She spoke about a revelation when Sophie was about four years old that she would need to teach Sophie how to think, because this is very difficult to do without the language. This is when she decided to investigate a cochlear implant.
Navigating School and University
Mary shared the difficulty in finding a good school for Sophie. She tried out a specialist school for deaf children, and mainstream schools (in both Australia and the USA). She wanted Sophie to have a good education but also for Sophie to experience social situations. None of the school experiences were perfect. Later Sophie went to university, and that presented challenges as well. Even if there were Auslan (Australian Sign Language) interpreters, sometimes they wouldn’t be available for particular classes.
Sophie and Dancing
Mary spoke about the benefits that Sophie has had from doing dancing. First, it was a new opportunity, and this extended Sophie’s opportunity to learn new words from being immersed in different situations. She said that when you have a hearing-impaired child you worry about background noise, so basketball is out. But in a ballet studio the children have to be quiet and listen to the teacher. So, in a way Sophie was having speech therapy without knowing it. Interestingly, she was also very expressive and musical. She ended up doing a year 12 dance, and she was one of the top 5% in the state. She was particularly good at tap dancing, and Mary said this is a great form of dance for Deaf children.
Cochlear Implants: A Dual Perspective
Mary acknowledges that cochlear implants have significantly transformed Sophie’s life, but they come with limitations. Sophie now communicates using Auslan and benefits from the implants, straddling both the hearing and deaf worlds. However, Sophie’s first implant failed due to a software glitch, leading to a second surgery after 26 years.
Sophie’s reality remains unchanged—she goes to bed deaf and wakes up the same way. Yet, the implant acts as a powerful tool, akin to putting on glasses.
Nowadays, in her mentoring role, Sophie emphasises confidence-building. Many individuals with implants or hearing loss struggle with confidence, but Sophie guides them toward reclaiming it. Whether in the workforce or daily life, she empowers others to overcome barriers and find their voice.
Where is Sophie Now?
Mary told us a bit about what Sophie has been doing since her book was published in 2020. Amongst many exciting developments, Sophie has invented a subscription-based global online signing dictionary called Sign How, as well as a signing app.
Resources:
· To read the full story, purchase Mary’s Last Dance by Mary Li online.
· Learn about Sophie’s Sign How dictionary.
This condensed account was written by Dr Maretta Mann, Strategic Development Manager, and host of the Book Club at Inclusive Futures: Reimagining Disability.
Dr Maretta Mann and Mary Li -
Disability Inclusion Author Talk Series: A conversation with Mary Li - Principal Repétitéur and Ballet Mistress with the Queensland Ballet and author of Mary’s Last Dance.
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Inclusive Futures: Reimagining Disability invites you to attend our Author Talk event with esteemed guest Mary Li (author of Mary’s Last Dance), hosted by Dr Maretta Mann.
Mary Li (née McKendry) principal repétitéur at the Queensland Ballet, faced a unique challenge when her daughter, Sophie, was diagnosed as profoundly deaf at 17 months. Mary, a former principal dancer with the London Festival Ballet (English National Ballet), shifted her focus to support Sophie’s journey, juggling speech therapy and adapting her busy ballet schedule.
Sophie, determined to navigate the hearing world, learned to lip-read, received a cochlear implant, and embraced mainstream education. As a young woman, she discovered Auslan, enhancing her language skills and boosting confidence. Reflecting on Sophie’s journey after completing her memoir, “Mary’s Last Dance”, the entire family embraced Auslan, deepening their bond.
Born in Rockhampton, Queensland, Mary Li’s illustrious ballet career includes stints with the Royal Ballet and Houston Ballet. Returning to Australia, she spent a decade with the Australian Ballet before joining theQueensland Ballet as Principal Repétitéur. Alongside her husband Li Cunxin AO (https://licunxin.com), the artistic director, they elevated the company’s global standing.
Mary’s resilience, a hallmark of her ballet career, proved crucial in navigating and ultimately embracing her child’s disability. Her story, a fusion of ballet and family strength, exemplifies courage, determination, and unwavering will.
Find out more about Mary Li and her book “Mary’s Last Dance” at https://www.penguin.com.au/authors/mary-li
Visit Sophie Li’s website https://www.sophieli.com.au.
Event Details
Wednesday, 3 April 2024, 11.30 am–1.30 pm
Queensland Conservatorium (QCGU) Foyer, S01
Southbank Campus, Griffith University
Access a venue map on this link or visit https://www.griffith.edu.au/__data/assets/pdf_file/0023/361670/South-Bank-campus-map.pdfRSVP
Please confirm your attendance before:
Thursday, 21 March 2024
Click here to register your attendance or visit: https://forms.office.com/r/gLhhR3iV7mAlternatively register via the QR Code below.
Contact us
Inclusive Futures: Reimagining Disability
inclusivefutures@griffith.edu.au -
Disability Inclusion Author Talk Series: Matt Levy OAM PLY 'Going the Distance'
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Inclusive Futures: Reimagining Disability invites you to attend our Author Talk event on disability and resilience, with esteemed guest Matt Levy OAM PLY, Australian paralympian and author of Going the Distance.
In 1987, Matt Levy was born prematurely at 25 weeks. He was diagnosed with cerebral palsy and severe visual impairment and has undergone 40-50 surgeries on vital organs. Matt’s determination and resilience led him to a career in swimming, where he proudly clinched gold for Australia at the Paralympic Games.
Representing his nation at five consecutive Paralympic Games, Matt has won 3 gold, 1 silver, and 5 bronze medals. His dominance extends further, having graced the pools at five World Swimming Championships, securing 20 international medals and holding 4 World Records.
Matt’s contributions to sport were honoured with an Order of Australia Medal (OAM) in 2014 for ‘service to sport as a Gold Medallist at the London 2012 Paralympic Games. In 2015 Matt was named Athlete of the Year with a Disability at the New South Wales Sports Awards and in 2018 he was named Swimming Australia’s Paralympic Program Swimmer of the Year. In November 2021, he received a New South Wales Institute of Sport Academic Excellence Award and was named the 2021 Sport NSW Athlete of the Year with a Disability.
Since retiring from the pool, Matt has authored 3 books, including: ‘Keeping your head above water’ (2020), ‘Brandon Dreams Big: 7 easy steps to get where you want’ (2021), and ‘Going the distance: Identify and create your own lane to success’ (2023). More recently, Matt has turned his hand to philanthropy and supporting young people with disability to achieve their own dreams and goals through education, including becoming a patron of the Griffith University Matt Levy Inclusive Futures Scholarship.
Event Details
Date: Tuesday, 27 February 2024Time: 11.20am – 12.30pm
Venue: N53, -1.22 Nathan Campus, Griffith University
Map: https://www.griffith.edu.au/__data/assets/pdf_file/0032/244976/nathan-campus-map.pdf
Accessibility: This event will be accessible including being held in an accessible space, complete with accessible parking (limited), live captioning, Auslan Interpreting, and with a PowerPoint which can be shared ahead of the presentation. A transcript will be available after the event. Please note any accessibility or dietary requirements on your registration.
RSVP:
Please confirm your attendance before Thursday, 22 February 2024.Click on this link to register your interest or use the QR Code below.
Contact us:
inclusivefutures@griffith.edu.au
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International Day of People with Disability 2023 – Matt Levy: From Premature Birth to Paralympic Gold
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International Day of People with Disability (IDPwD) is a United Nations observed day held on 3 December each year. The IDPwD program aligns with Australia’s Disability Strategy 2021-31 and aims to increase public awareness, understanding and acceptance of people with disability.
The United Nations Theme for IDPwD 2023 is ‘United in action to rescue and achieve the Sustainable Development Goals (SDGs) for, with and by persons with disabilities.’ This year, we introduce IDPwD Ambassador, Matt Levy OAM, Patron of the Matt Levy Inclusive Futures Scholarship at Griffith University.
In 1987, Matt Levy was born prematurely at 25 weeks. He was diagnosed with cerebral palsy and severe visual impairment and has undergone 40-50 surgeries on various vital organs. Matt's determination and resilience led him to a career in swimming, where he proudly clinched gold for Australia at the Paralympic Games.
Representing his nation at five consecutive Paralympic Games, Matt has won 3 gold, 1 silver, and 5 bronze medals. His dominance extends further, having graced the pools at five World Swimming Championships, securing an 20 international medals and holding 4 World Records.
Matt’s contributions to sport were honoured with an Order of Australia Medal (OAM) in 2014 for ‘service to sport as a Gold Medallist at the London 2012 Paralympic Games. In 2015 Matt was named Athlete of the Year with a Disability at the New South Wales Sports Awards and in 2018 he was named Swimming Australia’s Paralympic Program Swimmer of the Year. In November 2021, he received a New South Wales Institute of Sport Academic Excellence Award and was named the 2021 Sport NSW Athlete of the Year with a Disability.
Yet, Matt's achievements aren't confined to the pool. He has earnt a degree in Business Management, an Australian Institute of Company Directors qualification, and an MBA in Leadership. He is a passionate inclusion advocate, motivational speaker and holds multiple board, advisory and ambassadorial roles with sporting, community and humanitarian organisations including Ability Options, Life Little Treasures and BlindSports Australia.
Since retiring from the pool, Matt has authored 3 books, including: ‘Keeping your head above water’ (2020), ‘Brandon Dreams Big: 7 easy steps to get where you want’ (2021), and ‘Going the distance: Identify and create your own lane to success’ (2023).
More recently, Matt has turned his hand to philanthropy and supporting young people with disability to achieve their own dreams and goals through education.
“Education has allowed me to grow and enhance what I've been able to learn and, how I can use my lived experience of disability to influence others. As part of this, it was also my mission to help other people with disability to obtain a university education.”
To Matt, International Day of People Disability (IDPwD) is “about having a sense of responsibility and belonging. A chance to give people an insight into what we go through on a daily basis. Not to feel bitter, but to help raise awareness of what can be done. I know how hard it is for someone living with a disability, so I wanted to give people opportunities that I was given”.
As a result, Matt established the Matt Levy Inclusive Futures Scholarship to support students with disability to achieve their potential at Griffith University. Open to Australian, domestic commencing students (full time or part time) enrolled in an undergraduate program, the scholarship provides up to $20,000, payable over the duration of the degree.
This year the Matt Levy Scholarship supported two (2) commencing students with disability; including Lilje Schluter, who is studying a Bachelor of Criminology and Criminal Justice.
"Being a recipient of this scholarship has allowed me to afford regular access to psychology and psychiatry sessions. Not only has this greatly aided me in learning and adjusting to my first year of tertiary studies, but the support of the scholarship continues to help me move forward each and every day, which is an invaluable gift".
Matt Levy's life stands as a testament to determination, inspiring individuals worldwide to overcome adversity and achieve goals. On Tuesday, 27 February 2024, Matt will be the guest speaker at our Inclusive Futures Book Club – Author Talk event, where he will share his story, and discuss his latest book ‘Going the Distance’ with students and guests during O-Week (Nathan Campus). If you are interested in attending, please email us at inclusivefutures@griffith.edu.au.
You can also sign up for our newsletter, or keep an eye on our website for announcements.
Find out more about our Inclusive Futures Book club:
https://inclusivefutures.griffith.edu.au/inclusive-futures-book-club
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Inclusive Futures Book Club: Janine Shepherd AM and Mark Berridge
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We were honoured to welcome authors Janine Shepherd AM and Mark Berridge to our Inclusive Futures bookclub event on Wednesday, 25 October for a conversation about life after spinal cord injury, hosted by Dr Maretta Mann. Janine and Mark spoke openly about losing their sense of identity, and having to reimagine and rebuild themselves. Recovery is a full-time job in a rehabilitation unit, but they found support and kindness from angels - fellow in-patients, nurses and physios, family and friends. At many times they hit rock-bottom, and spoke of reframing their demons, and setting and working towards small, incremental goals.
Janine, who was training for the Olympics when she had her accident, said that she used skills she developed as an athlete in her recovery, but that she believes everyone "has it in them" to find their new path. For her, becoming a pilot (including an aerobatics flying instructor) "literally saved my life". Mark, who was a senior corporate leader when he had his accident, said that we need to help people to "paint a picture" for where they want to go and provide the support networks to help them get there.
They also discussed the importance of agency in a dehumanising hospital environment, where rehabilitation patients spend a lot of time, and the opportunity to make assistive devices beautiful as well as functional. A beautiful walking stick or mobility scooter can help people to feel comfortable being themselves and being visible.
We encourage you to read their books:
Defiant - A broken body is not a broken person, by Janine Shepherd
A Fraction Stronger - Finding belief and possibility in life's impossible moments, by Mark Berridge.
Join our Inclusive Futures Book Club to find out about future events: https://inclusivefutures.griffith.edu.au/inclusive-futures-book-club
