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Inclusive Futures Book Club Guest: Dr Sarah Brooker, author of My Lucky Stroke
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Summary by Dr Maretta Mann
I had the great pleasure of hosting Dr. Sarah Brooker, author of "My Lucky Stroke” at our recent Inclusive Futures Book Club online event on Tuesday 13 August 2024. Having just finished reading Sarah’s book before our event, I found her presentation to contain the same honesty, insight and humour that I enjoyed when reading her story. Here is my summary of our event.
Dr Sarah Brooker and Dr Maretta Mann.A life-saving accident
Sarah shared her story about her life journey pre- and post-stroke. She began by telling us about her fascination as a young child with the brain and her ambition to become a neuroscientist. She was about to begin her Honours degree, when an accident changed the course of her life. While driving with her two sisters in the car, she had a stroke causing her to crash into a pole. That car accident, while giving her multiple serious injuries, probably also saved her life by preventing a sub arachnoid haemorrhage.
Visible and invisible injuries
Sarah explained that whilst she suffered broken bones and other serious injuries from the car accident, the biggest effects on her life, caused by trauma to her brain, were not apparent for days, months and years afterwards. The first of these changes was the discovery that her pituitary gland was missing, and later she learnt that she was deaf in one ear and had lost her sense of smell. These diagnoses took time because Sarah’s brain injury meant that she had no knowledge or recollection of what it meant to hear or to smell from before her accident.
The ”new” Sarah
Sarah’s rehabilitation journey involved learning again how to eat, walk, dress, cook and to socialise with others. In some ways she was like a child learning about “the new Sarah” and the world around her. However, some parts of her memory were functioning very well. Remarkably, Sarah could remember every fact that she had learnt about the human brain and she was still really passionate about neuroscience.
Trying to fit in was the biggest challenge
Once Sarah left the rehabilitation unit, she found it very difficult to fit into the outside world. Her occupational therapist recommended getting a therapy dog, and so Harvey the fluffy Maltese terrier entered her life. He helped her by providing her with another being to care for and in her interactions with other people. So, with Harvey in her life she went back to university and finished her Honours degree in neuropharmacology, and later a PhD. But the ”new Sarah” found that she didn’t fit into the scientific world. She found it difficult to make friends other than with other people with disability.
A friend and a diagnosis
Two important things happened gave Sarah purpose and a feeling of belonging. She met Alan, who became her friend and later her husband. Alan did not make excuses for her and helped her to navigate a social world. Also, she finally got a diagnosis for her brain injury – orbitofrontal syndrome. Sarah told us how powerful it was to have this diagnosis. It helped her to explain and to manage her own behaviour.
The importance of disability disclosure
Sarah tried several career paths but eventually found happiness as a teacher. She recounted a time when she was studying to become a teacher and someone from the university’s Disability Liaison Unit said to her class:
“‘If you need our help, we are here and don't worry, we won't disclose anything.’ And I was so offended. In my mind, a failure to disclose perpetuates ignorance and ignorance only made it harder to survive.”
In Sarah’s view, disclosure was important both for protecting her from harm in her job, as well as helping others to understand that “the silly little foibles that are Sarah” are due to the golf ball-sized hole in her brain.
Sharing experiences of brain injury
In the discussion following Sarah’s presentation, some attendees shared their own experiences of life after brain injury. As always with these events, I sensed a warmth and connection in the virtual room, where people felt safe to be open, and support each other.
'My Lucky Stroke'
My Lucky Stroke is sadly out of print. I was fortunate to find a second-hand copy, but otherwise you can purchase the e-book on Amazon, here: https://www.amazon.com.au/My-Lucky-Stroke-Sarah-Brooker-ebook/dp/B084ZTG7BH
The book is available as an accessible 16pt large print paperback edition from Better Read Than Dead Bookstore in Newtown, purchase here: https://www.betterread.com.au/book/my-lucky-stroke-16pt-large-print-edition.do
Watch the Author talk on YouTube (An accessible transcript in large print or other formats is available upon request): https://youtu.be/DTPWXlcW7Ao?si=Lg709dg8-zx_4vbm
You can also listen to Sarah’s 2018 interview with Richard Fidler on ABC Conversations here: https://www.abc.net.au/listen/programs/conversations/conversations-sarah-brooker-rpt/9926380
More Information:
inclusivefutures@griffith.edu.au
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Disability Inclusion Author Talk Series: Dr Sarah Brooker
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INCLUSIVE FUTURES BOOK CLUB
A Conversation with Dr Sarah Brooker - Neuroscientist, teacher and author of My Lucky Stroke.
Inclusive Futures: Reimagining Disability invites you to attend our Author Talk with esteemed guest Dr Sarah Brooker (author of My Lucky Stroke), hosted by Dr Maretta Mann.
In 2002 Sarah Brooker was only 20 years old and on the brink of realising her dreams. She had graduated from Monash University and was about to become a neuroscientist. Then, a series of catastrophic events – a stroke, a car accident, a coma – and she was robbed of that life forever.
I woke up in her place. I was a broken body, with little memory of who I had been, and little understanding of the world I was in. I have spent the past 22 years trying to put my life back together. In that time, I have had to learn to walk, talk, and eat again. That was easy.
I have completed several University degrees, including returning to Neuroscience to complete my PhD. That was easy too. What has been difficult has been learning and re-learning my place in the world, and what it means to live with an acquired brain injury.
I have been a rehabilitation counsellor, a radio DJ, a student support officer and have finally found my place as a teacher. I am Dr Sarah Brooker and I have come along today to share the story of my recovery with you.
Find out more about Dr Sarah Brooker and her book “My Lucky Stroke” here.
EVENT DETAILSTuesday, 13 August 2024
12 noon–1 pm AEST | 11.30 am–12.30 pm ACST
This online event will be hosted on Microsoft Teams. A meeting link will be shared with you upon registration.RSVP
Please register your attendance before Thursday, 9 August here or via the QR code.
MORE INFORMATION
inclusivefutures@griffith.edu.auTHIS WILL BE AN ACCESSIBLE EVENT WITH LIVE CAPTIONS AND A TRANSCRIPT AVAILABLE POST EVENT.
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Disability Inclusion Author Talk Series: A conversation with Mary Li - Principal Repétitéur and Ballet Mistress with the Queensland Ballet and author of Mary’s Last Dance.
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Inclusive Futures: Reimagining Disability invites you to attend our Author Talk event with esteemed guest Mary Li (author of Mary’s Last Dance), hosted by Dr Maretta Mann.
Mary Li (née McKendry) principal repétitéur at the Queensland Ballet, faced a unique challenge when her daughter, Sophie, was diagnosed as profoundly deaf at 17 months. Mary, a former principal dancer with the London Festival Ballet (English National Ballet), shifted her focus to support Sophie’s journey, juggling speech therapy and adapting her busy ballet schedule.
Sophie, determined to navigate the hearing world, learned to lip-read, received a cochlear implant, and embraced mainstream education. As a young woman, she discovered Auslan, enhancing her language skills and boosting confidence. Reflecting on Sophie’s journey after completing her memoir, “Mary’s Last Dance”, the entire family embraced Auslan, deepening their bond.
Born in Rockhampton, Queensland, Mary Li’s illustrious ballet career includes stints with the Royal Ballet and Houston Ballet. Returning to Australia, she spent a decade with the Australian Ballet before joining theQueensland Ballet as Principal Repétitéur. Alongside her husband Li Cunxin AO (https://licunxin.com), the artistic director, they elevated the company’s global standing.
Mary’s resilience, a hallmark of her ballet career, proved crucial in navigating and ultimately embracing her child’s disability. Her story, a fusion of ballet and family strength, exemplifies courage, determination, and unwavering will.
Find out more about Mary Li and her book “Mary’s Last Dance” at https://www.penguin.com.au/authors/mary-li
Visit Sophie Li’s website https://www.sophieli.com.au.
Event Details
Wednesday, 3 April 2024, 11.30 am–1.30 pm
Queensland Conservatorium (QCGU) Foyer, S01
Southbank Campus, Griffith University
Access a venue map on this link or visit https://www.griffith.edu.au/__data/assets/pdf_file/0023/361670/South-Bank-campus-map.pdfRSVP
Please confirm your attendance before:
Thursday, 21 March 2024
Click here to register your attendance or visit: https://forms.office.com/r/gLhhR3iV7mAlternatively register via the QR Code below.
Contact us
Inclusive Futures: Reimagining Disability
inclusivefutures@griffith.edu.au -
Inclusive Futures Book Club: Janine Shepherd AM and Mark Berridge
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We were honoured to welcome authors Janine Shepherd AM and Mark Berridge to our Inclusive Futures bookclub event on Wednesday, 25 October for a conversation about life after spinal cord injury, hosted by Dr Maretta Mann. Janine and Mark spoke openly about losing their sense of identity, and having to reimagine and rebuild themselves. Recovery is a full-time job in a rehabilitation unit, but they found support and kindness from angels - fellow in-patients, nurses and physios, family and friends. At many times they hit rock-bottom, and spoke of reframing their demons, and setting and working towards small, incremental goals.
Janine, who was training for the Olympics when she had her accident, said that she used skills she developed as an athlete in her recovery, but that she believes everyone "has it in them" to find their new path. For her, becoming a pilot (including an aerobatics flying instructor) "literally saved my life". Mark, who was a senior corporate leader when he had his accident, said that we need to help people to "paint a picture" for where they want to go and provide the support networks to help them get there.
They also discussed the importance of agency in a dehumanising hospital environment, where rehabilitation patients spend a lot of time, and the opportunity to make assistive devices beautiful as well as functional. A beautiful walking stick or mobility scooter can help people to feel comfortable being themselves and being visible.
We encourage you to read their books:
Defiant - A broken body is not a broken person, by Janine Shepherd
A Fraction Stronger - Finding belief and possibility in life's impossible moments, by Mark Berridge.
Join our Inclusive Futures Book Club to find out about future events: https://inclusivefutures.griffith.edu.au/inclusive-futures-book-club
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Book Club: Sexual Health, Wellbeing and Disability
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INCLUSIVE FUTURES BOOK CLUB
A conversation with authors Dr. Marita Heck (author of Secret Forces) and conversation partners Lisa Cox and Chantelle Otten.
Inclusive Futures: Reimagining Disability, Griffith University hosted our latest #BookClub event on #SexualHealth, #wellbeing and #disability, with author Marita Heck and conversation partners Lisa Cox and Chantelle Otten online, on Wednesday, 23 August on Microsoft Teams.
It is a human right to experience positive #SexualHealth and wellbeing, yet it is a topic that is often neglected and ignored. Please join us (via our online recording) for an open, honest discussion about challenges experienced by #PeopleWithDisability and how we can increase awareness, education and support.
Dr Marita Heck (PhD, Master of Midwifery, Bachelor of Nursing Science) is an Adjunct Research Fellow with The Hopkins Centre, Menzies Health Institute Queensland, Griffith University on the Gold Coast in Queensland. Dr Heck is further a member of the Griffith University’s Inclusive Futures task force. In this space, Dr Heck is leading a consumer-led multidisciplinary research project in collaboration with five Australian universities promoting holistic sexual health support for people living with a spinal cord injury.
In addition, Dr Heck conducts research into supporting women living with an SCI in pre-pregnancy, antenatal, birth and postnatal support. Dr Heck is further a very experienced #clinician working with people living with a disability in the sexuality and fertility, and antenatal, birth and postnatal period in the Australian community. Besides her work in the research and the clinical setting, Dr Heck is a vivid romance novel author and published her first suspense romance novel Secret Forces in 2020.
Lisa Cox is an Internationally awarded thought leader, TEDx speaker, #authorand consultant who is working with business, government, Griffith University and others to help create solutions and change social attitudes towards disability. Her work has been recognised around the globe and featured in media like FOX, NBC News, Huffington Post, Smart Company, Vogue and AdNews Australia.
Chantelle Otten is a Melbourne based Psycho-Sexologist who is passionate about empowering people to feel great about their sexual health, self-esteem, communication and education. With a background in scientific research, sexual medicine, and counselling, she believes that sexuality and self-esteem are an integral part of life, which everyone is entitled to. Good sexual health should always be enjoyable, pain free and without prejudice.
For those who missed the event, you can access the recording here https://youtu.be/11DP3nz_Tn4 - A full and accessible transcript can be provided upon request.For more information about the author Dr. Marita Heck:
https://www.amazon.com.au/Secret-Forces-Marita-Heck-ebook/dp/B08KTSLM2Ghttps://www.sexpositivecommunity.com/
For more information about Lisa Cox:
https://www.instagram.com/lisacox.co/
For more information about Chantelle Otten:
https://chantelleotten.com/https://www.instagram.com/chantelle_otten_sexologist/
If you would like to stay up to date with upcoming events and join the Inclusive Futures book club community, you can join up here: https://inclusivefutures.griffith.edu.au/inclusive-futures-book-club?tool=survey_tool#tool_tab
If you have any questions or would like a copy of the transcript, please do not hesitate to contact the team at inclusivefutures@griffith.edu.au.