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Inclusive Futures Book Club Guest: Dr Sarah Brooker, author of My Lucky Stroke
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Summary by Dr Maretta Mann
I had the great pleasure of hosting Dr. Sarah Brooker, author of "My Lucky Stroke” at our recent Inclusive Futures Book Club online event on Tuesday 13 August 2024. Having just finished reading Sarah’s book before our event, I found her presentation to contain the same honesty, insight and humour that I enjoyed when reading her story. Here is my summary of our event.
Dr Sarah Brooker and Dr Maretta Mann.A life-saving accident
Sarah shared her story about her life journey pre- and post-stroke. She began by telling us about her fascination as a young child with the brain and her ambition to become a neuroscientist. She was about to begin her Honours degree, when an accident changed the course of her life. While driving with her two sisters in the car, she had a stroke causing her to crash into a pole. That car accident, while giving her multiple serious injuries, probably also saved her life by preventing a sub arachnoid haemorrhage.
Visible and invisible injuries
Sarah explained that whilst she suffered broken bones and other serious injuries from the car accident, the biggest effects on her life, caused by trauma to her brain, were not apparent for days, months and years afterwards. The first of these changes was the discovery that her pituitary gland was missing, and later she learnt that she was deaf in one ear and had lost her sense of smell. These diagnoses took time because Sarah’s brain injury meant that she had no knowledge or recollection of what it meant to hear or to smell from before her accident.
The ”new” Sarah
Sarah’s rehabilitation journey involved learning again how to eat, walk, dress, cook and to socialise with others. In some ways she was like a child learning about “the new Sarah” and the world around her. However, some parts of her memory were functioning very well. Remarkably, Sarah could remember every fact that she had learnt about the human brain and she was still really passionate about neuroscience.
Trying to fit in was the biggest challenge
Once Sarah left the rehabilitation unit, she found it very difficult to fit into the outside world. Her occupational therapist recommended getting a therapy dog, and so Harvey the fluffy Maltese terrier entered her life. He helped her by providing her with another being to care for and in her interactions with other people. So, with Harvey in her life she went back to university and finished her Honours degree in neuropharmacology, and later a PhD. But the ”new Sarah” found that she didn’t fit into the scientific world. She found it difficult to make friends other than with other people with disability.
A friend and a diagnosis
Two important things happened gave Sarah purpose and a feeling of belonging. She met Alan, who became her friend and later her husband. Alan did not make excuses for her and helped her to navigate a social world. Also, she finally got a diagnosis for her brain injury – orbitofrontal syndrome. Sarah told us how powerful it was to have this diagnosis. It helped her to explain and to manage her own behaviour.
The importance of disability disclosure
Sarah tried several career paths but eventually found happiness as a teacher. She recounted a time when she was studying to become a teacher and someone from the university’s Disability Liaison Unit said to her class:
“‘If you need our help, we are here and don't worry, we won't disclose anything.’ And I was so offended. In my mind, a failure to disclose perpetuates ignorance and ignorance only made it harder to survive.”
In Sarah’s view, disclosure was important both for protecting her from harm in her job, as well as helping others to understand that “the silly little foibles that are Sarah” are due to the golf ball-sized hole in her brain.
Sharing experiences of brain injury
In the discussion following Sarah’s presentation, some attendees shared their own experiences of life after brain injury. As always with these events, I sensed a warmth and connection in the virtual room, where people felt safe to be open, and support each other.
'My Lucky Stroke'
My Lucky Stroke is sadly out of print. I was fortunate to find a second-hand copy, but otherwise you can purchase the e-book on Amazon, here: https://www.amazon.com.au/My-Lucky-Stroke-Sarah-Brooker-ebook/dp/B084ZTG7BH
The book is available as an accessible 16pt large print paperback edition from Better Read Than Dead Bookstore in Newtown, purchase here: https://www.betterread.com.au/book/my-lucky-stroke-16pt-large-print-edition.do
Watch the Author talk on YouTube (An accessible transcript in large print or other formats is available upon request): https://youtu.be/DTPWXlcW7Ao?si=Lg709dg8-zx_4vbm
You can also listen to Sarah’s 2018 interview with Richard Fidler on ABC Conversations here: https://www.abc.net.au/listen/programs/conversations/conversations-sarah-brooker-rpt/9926380
More Information:
inclusivefutures@griffith.edu.au
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Disability Inclusion Author Talk Series: Dr Sarah Brooker
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INCLUSIVE FUTURES BOOK CLUB
A Conversation with Dr Sarah Brooker - Neuroscientist, teacher and author of My Lucky Stroke.
Inclusive Futures: Reimagining Disability invites you to attend our Author Talk with esteemed guest Dr Sarah Brooker (author of My Lucky Stroke), hosted by Dr Maretta Mann.
In 2002 Sarah Brooker was only 20 years old and on the brink of realising her dreams. She had graduated from Monash University and was about to become a neuroscientist. Then, a series of catastrophic events – a stroke, a car accident, a coma – and she was robbed of that life forever.
I woke up in her place. I was a broken body, with little memory of who I had been, and little understanding of the world I was in. I have spent the past 22 years trying to put my life back together. In that time, I have had to learn to walk, talk, and eat again. That was easy.
I have completed several University degrees, including returning to Neuroscience to complete my PhD. That was easy too. What has been difficult has been learning and re-learning my place in the world, and what it means to live with an acquired brain injury.
I have been a rehabilitation counsellor, a radio DJ, a student support officer and have finally found my place as a teacher. I am Dr Sarah Brooker and I have come along today to share the story of my recovery with you.
Find out more about Dr Sarah Brooker and her book “My Lucky Stroke” here.
EVENT DETAILSTuesday, 13 August 2024
12 noon–1 pm AEST | 11.30 am–12.30 pm ACST
This online event will be hosted on Microsoft Teams. A meeting link will be shared with you upon registration.RSVP
Please register your attendance before Thursday, 9 August here or via the QR code.
MORE INFORMATION
inclusivefutures@griffith.edu.auTHIS WILL BE AN ACCESSIBLE EVENT WITH LIVE CAPTIONS AND A TRANSCRIPT AVAILABLE POST EVENT.
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Inclusive Futures Author Talk Series: Matt Levy OAM PLY "Going the Distance: Identify and create your own lane to success"
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Disability Inclusion Author Talk Series: With guest speaker, Matt Levy OAM PLY Paralympian and author of ‘Going the Distance: Identify and create your own lane to success’. Hosted by Dr Maretta Mann.
Matt Levy OAM PLY with Dr. Maretta Mann Last Tuesday, 27 February, Griffith Inclusive Futures: Reimagining Disability hosted esteemed guest Matt Levy OAM PLY, Australian Paralympian and author of “Going the Distance”.
In his talk, Matt shared his life journey, marked by early challenges due to being born prematurely with cerebral palsy, and emphasised the transformative role of swimming therapy in overcoming his physical limitations. Matt also discussed the impact of cerebral palsy on his daily life, highlighting the importance of recognising that disabilities affect individuals differently.
From top left to right: Matt Levy OAM; Julia Robertson together with Matt Levy and Mark Berridge; Attendees at the Author Talk held at Nathan Campus, Griffith University.Matt has developed a framework based on his experiences. He stressed the significance of setting manageable goals, driven by passion and belief. He told us the story of where it all started for him, when he was left behind at the pool after the school swimming carnival. He found a way to navigate across Sydney via public transport to get home that took him over three hours and it taught him a crucial lesson in goal-setting.
Matt also detailed his remarkable achievements, participating in five Paralympic Games, emphasising that the journey and the learning experiences matter more than the accolades. Matt also reflected on a pivotal moment during the 2008 Paralympic Games when he realised the need for a change in attitude and commitment to continuous improvement.
He delved into the importance of having a dream, a desire, and creating tools for success. Matt shared the necessity of focusing on the purpose behind one's actions, particularly during challenging days, and encouraged attendees to make the most out of every moment, whether positive or negative.
Matt introduced his ‘action plan’, breaking down big goals into smaller, manageable steps, and underscored the importance of simplicity and a focused approach in achieving success, drawing parallels between his training sessions and broader life goals.
Matt also emphasied the role of a supportive team, including family, friends, colleagues, and coaches, in personal growth., and highlighted the significance of engaging with one's inner circle through meaningful conversations, collaborations, and shared experiences.
Wapping up a most impactful Author Talk, Matt concluded by stressing the value of lifting each other higher and turning negatives into positives through supportive relationships.I was so inspired by Matt, who has achieved so much success by following a process of setting goals and then working towards them, and also of approaching the setbacks or disappointments as an opportunity for reflection, learning and growth.
Matt also encouraged others not to compare themselves with others, but to follow one’s own path.
I think everyone in the room left feeling encouraged by Matt’s practical and inspiring approach to reaching your potential.
From top left to right: Prof. David Thiel; Cathy Easte, Tara Horner and Matt Levy OAM PLY, Captioner Roxane Lane; and Nathaniel Audley, Tara Horner, Maureen Sullivan and Mark Berridge.TRANSCRIPT:
If you wish to obtain a transcript of Matt’s keynote talk, please email the Inclusive Futures: Reimagining team at: inclusivefutures@griffith.edu.au
UPCOMING EVENTS:
Our next Author Talk guest is the highly esteemed Mary Li – Principal Repetiteur and Ballet Mistress with the Queensland Ballet and author of “Mary’s Last Dance”, to be held on Wednesday, 3 April 11.30am-1.30pm, at the Queensland Conservatorium (QCGU) Foyer, SO1, Southbank Campus, Griffith University.
Register for this FREE and inclusive event on this link: https://shorturl.at/JOV46
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Disability Inclusion Author Talk Series: A conversation with Mary Li - Principal Repétitéur and Ballet Mistress with the Queensland Ballet and author of Mary’s Last Dance.
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Inclusive Futures: Reimagining Disability invites you to attend our Author Talk event with esteemed guest Mary Li (author of Mary’s Last Dance), hosted by Dr Maretta Mann.
Mary Li (née McKendry) principal repétitéur at the Queensland Ballet, faced a unique challenge when her daughter, Sophie, was diagnosed as profoundly deaf at 17 months. Mary, a former principal dancer with the London Festival Ballet (English National Ballet), shifted her focus to support Sophie’s journey, juggling speech therapy and adapting her busy ballet schedule.
Sophie, determined to navigate the hearing world, learned to lip-read, received a cochlear implant, and embraced mainstream education. As a young woman, she discovered Auslan, enhancing her language skills and boosting confidence. Reflecting on Sophie’s journey after completing her memoir, “Mary’s Last Dance”, the entire family embraced Auslan, deepening their bond.
Born in Rockhampton, Queensland, Mary Li’s illustrious ballet career includes stints with the Royal Ballet and Houston Ballet. Returning to Australia, she spent a decade with the Australian Ballet before joining theQueensland Ballet as Principal Repétitéur. Alongside her husband Li Cunxin AO (https://licunxin.com), the artistic director, they elevated the company’s global standing.
Mary’s resilience, a hallmark of her ballet career, proved crucial in navigating and ultimately embracing her child’s disability. Her story, a fusion of ballet and family strength, exemplifies courage, determination, and unwavering will.
Find out more about Mary Li and her book “Mary’s Last Dance” at https://www.penguin.com.au/authors/mary-li
Visit Sophie Li’s website https://www.sophieli.com.au.
Event Details
Wednesday, 3 April 2024, 11.30 am–1.30 pm
Queensland Conservatorium (QCGU) Foyer, S01
Southbank Campus, Griffith University
Access a venue map on this link or visit https://www.griffith.edu.au/__data/assets/pdf_file/0023/361670/South-Bank-campus-map.pdfRSVP
Please confirm your attendance before:
Thursday, 21 March 2024
Click here to register your attendance or visit: https://forms.office.com/r/gLhhR3iV7mAlternatively register via the QR Code below.
Contact us
Inclusive Futures: Reimagining Disability
inclusivefutures@griffith.edu.au -
Disability Inclusion Author Talk Series: Matt Levy OAM PLY 'Going the Distance'
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Inclusive Futures: Reimagining Disability invites you to attend our Author Talk event on disability and resilience, with esteemed guest Matt Levy OAM PLY, Australian paralympian and author of Going the Distance.
In 1987, Matt Levy was born prematurely at 25 weeks. He was diagnosed with cerebral palsy and severe visual impairment and has undergone 40-50 surgeries on vital organs. Matt’s determination and resilience led him to a career in swimming, where he proudly clinched gold for Australia at the Paralympic Games.
Representing his nation at five consecutive Paralympic Games, Matt has won 3 gold, 1 silver, and 5 bronze medals. His dominance extends further, having graced the pools at five World Swimming Championships, securing 20 international medals and holding 4 World Records.
Matt’s contributions to sport were honoured with an Order of Australia Medal (OAM) in 2014 for ‘service to sport as a Gold Medallist at the London 2012 Paralympic Games. In 2015 Matt was named Athlete of the Year with a Disability at the New South Wales Sports Awards and in 2018 he was named Swimming Australia’s Paralympic Program Swimmer of the Year. In November 2021, he received a New South Wales Institute of Sport Academic Excellence Award and was named the 2021 Sport NSW Athlete of the Year with a Disability.
Since retiring from the pool, Matt has authored 3 books, including: ‘Keeping your head above water’ (2020), ‘Brandon Dreams Big: 7 easy steps to get where you want’ (2021), and ‘Going the distance: Identify and create your own lane to success’ (2023). More recently, Matt has turned his hand to philanthropy and supporting young people with disability to achieve their own dreams and goals through education, including becoming a patron of the Griffith University Matt Levy Inclusive Futures Scholarship.
Event Details
Date: Tuesday, 27 February 2024Time: 11.20am – 12.30pm
Venue: N53, -1.22 Nathan Campus, Griffith University
Map: https://www.griffith.edu.au/__data/assets/pdf_file/0032/244976/nathan-campus-map.pdf
Accessibility: This event will be accessible including being held in an accessible space, complete with accessible parking (limited), live captioning, Auslan Interpreting, and with a PowerPoint which can be shared ahead of the presentation. A transcript will be available after the event. Please note any accessibility or dietary requirements on your registration.
RSVP:
Please confirm your attendance before Thursday, 22 February 2024.Click on this link to register your interest or use the QR Code below.
Contact us:
inclusivefutures@griffith.edu.au
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Bounce Forward: Strategies for Cultivating Resilience
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On Wednesday, 29 November Inclusive Futures: Reimagining Disability, together with Enabled.vip hosted Janine Shepherd AM, Australian Author, Keynote Speaker and Resiliency Coach to present the ‘Bounce Forward: Strategies for Cultivating Resilience’ seminar at Griffith University, Nathan Campus.
In this inspiring and educational keynote, Janine Shepherd shared her personal story about tragedy and resilience, as well as insights form her study of neuroscience, neuroplasticity and positive psychology. Her message of hope reaffirms that people can recover, learn and grow after seemingly insurmountable setbacks.
Janine is an internationally renowned speaker and former champion skier whose TED talk, “A Broken Body Isn’t a Broken Person”, has over 1.7 million views. After a bike accident ended her skiing career, Shepherd faced a daunting recovery and an uncertain future. She went on to become a commercial pilot and aerobatics flight instructor, earn a university degree and author six best-selling books. She is currently undertaking a PhD in resilience and disability at Griffith University.
If you missed out on attending this fantastic session, you can watch the recording on our YouTube channel: https://youtu.be/S1G3NkUHT1c?si=QWPCafDFSxbVwxU6
Visit Janine’s website: https://janineshepherd.com
Find out more about Enabled.vip: https://enabled.vip
FURTHER READING: Disability Action Week. Access Ignites: It’s Good Business
https://www.hopkinscentre.edu.au/news-view/disability-action-week-access-ignites-its-good-431
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International Day of People with Disability 2023 – Matt Levy: From Premature Birth to Paralympic Gold
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International Day of People with Disability (IDPwD) is a United Nations observed day held on 3 December each year. The IDPwD program aligns with Australia’s Disability Strategy 2021-31 and aims to increase public awareness, understanding and acceptance of people with disability.
The United Nations Theme for IDPwD 2023 is ‘United in action to rescue and achieve the Sustainable Development Goals (SDGs) for, with and by persons with disabilities.’ This year, we introduce IDPwD Ambassador, Matt Levy OAM, Patron of the Matt Levy Inclusive Futures Scholarship at Griffith University.
In 1987, Matt Levy was born prematurely at 25 weeks. He was diagnosed with cerebral palsy and severe visual impairment and has undergone 40-50 surgeries on various vital organs. Matt's determination and resilience led him to a career in swimming, where he proudly clinched gold for Australia at the Paralympic Games.
Representing his nation at five consecutive Paralympic Games, Matt has won 3 gold, 1 silver, and 5 bronze medals. His dominance extends further, having graced the pools at five World Swimming Championships, securing an 20 international medals and holding 4 World Records.
Matt’s contributions to sport were honoured with an Order of Australia Medal (OAM) in 2014 for ‘service to sport as a Gold Medallist at the London 2012 Paralympic Games. In 2015 Matt was named Athlete of the Year with a Disability at the New South Wales Sports Awards and in 2018 he was named Swimming Australia’s Paralympic Program Swimmer of the Year. In November 2021, he received a New South Wales Institute of Sport Academic Excellence Award and was named the 2021 Sport NSW Athlete of the Year with a Disability.
Yet, Matt's achievements aren't confined to the pool. He has earnt a degree in Business Management, an Australian Institute of Company Directors qualification, and an MBA in Leadership. He is a passionate inclusion advocate, motivational speaker and holds multiple board, advisory and ambassadorial roles with sporting, community and humanitarian organisations including Ability Options, Life Little Treasures and BlindSports Australia.
Since retiring from the pool, Matt has authored 3 books, including: ‘Keeping your head above water’ (2020), ‘Brandon Dreams Big: 7 easy steps to get where you want’ (2021), and ‘Going the distance: Identify and create your own lane to success’ (2023).
More recently, Matt has turned his hand to philanthropy and supporting young people with disability to achieve their own dreams and goals through education.
“Education has allowed me to grow and enhance what I've been able to learn and, how I can use my lived experience of disability to influence others. As part of this, it was also my mission to help other people with disability to obtain a university education.”
To Matt, International Day of People Disability (IDPwD) is “about having a sense of responsibility and belonging. A chance to give people an insight into what we go through on a daily basis. Not to feel bitter, but to help raise awareness of what can be done. I know how hard it is for someone living with a disability, so I wanted to give people opportunities that I was given”.
As a result, Matt established the Matt Levy Inclusive Futures Scholarship to support students with disability to achieve their potential at Griffith University. Open to Australian, domestic commencing students (full time or part time) enrolled in an undergraduate program, the scholarship provides up to $20,000, payable over the duration of the degree.
This year the Matt Levy Scholarship supported two (2) commencing students with disability; including Lilje Schluter, who is studying a Bachelor of Criminology and Criminal Justice.
"Being a recipient of this scholarship has allowed me to afford regular access to psychology and psychiatry sessions. Not only has this greatly aided me in learning and adjusting to my first year of tertiary studies, but the support of the scholarship continues to help me move forward each and every day, which is an invaluable gift".
Matt Levy's life stands as a testament to determination, inspiring individuals worldwide to overcome adversity and achieve goals. On Tuesday, 27 February 2024, Matt will be the guest speaker at our Inclusive Futures Book Club – Author Talk event, where he will share his story, and discuss his latest book ‘Going the Distance’ with students and guests during O-Week (Nathan Campus). If you are interested in attending, please email us at inclusivefutures@griffith.edu.au.
You can also sign up for our newsletter, or keep an eye on our website for announcements.
Find out more about our Inclusive Futures Book club:
https://inclusivefutures.griffith.edu.au/inclusive-futures-book-club