ICA Preconference: Dignified Representation of Disability and Diversity in the Media

EVENT RECAP:
Dignified Representation of Disability and Diversity in the Media

Presented by: Inclusive Futures: Reimagining Disability, Griffith University

Last week’s ICA preconference, "The Inaugural Disability Communications and Media Preconference 2024: Emerging or Emerged?", brought together scholars from 17 countries to delve into media discourse, participatory research, and disability representation.

On Friday, we were inspired by a roundtable led by Dr. Monique Lewis from Inclusive Futures: Reimagining Disability at Griffith University. Monique's skillful moderation highlighted critical issues, fostering meaningful change in inclusive media representation.

In this roundtable discussion, we contemplated the overarching landscape of disability representations in news and popular media forms, and how these portrayals work to construct notions of ‘disability’ and the ‘disabled person’. Invisibility and erasure of disability have been ongoing concerns for everyone involved in advocacy work, activism, community engagement and academic scholarship, with dignity as a paramount focus. We heard from panel members about their lived experiences of both invisibility and visibility in the media context, as well as insights into their own perspectives, advocacy, and contributions to disrupting, creating, and producing media content about disability.

The session also unpacked some of the broader social, cultural, political, and economic implications of ableism and disablism in the media, as well as the wealth of creative opportunities for social transformation, with inclusivity at its heart.

Dr Faith Valencia-Forrester, Lisa Cox, Sara Shams, Tina (Captioner) and Dr Monique Lewis.

PANELISTS

Dr. Monique Lewis: A senior lecturer in media and communication and a member of Inclusive Futures at Griffith University. Her research spans media, health and medicine, and risk sociologies, with a particular interest in news media landscapes, framing, and practice. She is the lead editor of Communicating COVID-19: Interdisciplinary Perspectives (2021) and Communicating COVID-19: Media, Trust and Public Engagement (2024) published by Palgrave.

Sara Shams: A pharmacist, model, speaker, creator, actor and formidable disability advocate. As a bilateral above knee amputee, her mission is to raise awareness on what it takes to be truly and authentically inclusive within the fashion and media industry, and beyond.

Lisa Cox: A TEDx speaker and internationally acclaimed disability advocate, and co-author of Media Diversity Australia’s ‘Disability Reporting Handbook’. Combining her professional background in advertising and media, with a lived experience of disability, Lisa is committed to changing public perceptions of disability by empowering professionals in some of the world’s most influential industries, like media. Her solutions-focused approach is helping professionals better navigate the nuances of disability inclusion through their content and workplace practices.

Dr. Faith Valencia Forrester: An expert in work-integrated learning and social change initiatives like Project Open Doors. Faith has combined her media experience, degrees in Arts, Law and Business, and completed her PhD in inclusive work-integrated learning with a view to developing an inclusive and diverse media cohort capable of changing the media landscape for the better.

Dr Maretta Mann (Strategic Development Manager, Inclusive Futures: Reimagining Disability) together with Lisa Cox, Dr Faith Valencia-Forrester and Sara Shams; Panel Dr Faith Valencia-Forrester and Sara Shams; Moderator Dr Monique Lewis.

WHY MEDIA REPRESENTATION MATTERS

Media representation of people with disability fosters more inclusive societies. As Mark Deuze noted in 2011, we live in media, not just with it. Our panellists discussed how media often portrays disability, along with its influence on societal perceptions, and the power relations involved.

PERSONAL STORIES AND PROFESSIONAL INSIGHTS

Sara Shams shared a poignant story illustrating misconceptions about disability. A public bathroom encounter highlighted how deeply ingrained biases and microaggressions are, stressing the need to normalise disability and break down societal and self-imposed barriers.

Lisa Cox and Monique Lewis discussed the impact of media representations on education and employment. Lisa’s experiences after acquiring her disabilities highlighted the social attitudes that hinder employment opportunities, despite unchanged qualifications and experience.

Dr. Faith Valencia Forrester's contribution was a profound exploration of the intersection between work-integrated learning (WIL), social change initiatives like Project Open Doors, and media representation of disability. She emphasised the transformative impact of WIL in enhancing employment opportunities for individuals with disability, bridging the gap between education and workplace readiness. Dr. Forrester highlighted Project Open Doors as a pioneering effort to foster inclusive work environments through collaborative partnerships with businesses. Her discussion underscored the crucial role of media in shaping perceptions of disability, advocating for dignified and respectful portrayals to promote societal inclusion. Dr. Forrester championed the importance of inclusive practices across sectors to drive meaningful social change and create more equitable opportunities for people with disability.

Dr Faith Valencia-Forrester; Professor Kuansong Victor Zhuang and Professor Katie Ellis; Attendees at the event listen to the panel discussion.

MEDIA DIVERSITY AUSTRALIA DISABILITY REPORTING HANDBOOK

The discussion on the Disability Reporting Handbook, led by co-authors Lisa Cox and Faith Valencia Forrester, highlighted its pivotal role in guiding journalists towards more accurate and respectful reporting on disability issues. Developed in collaboration with Griffith University's Inclusive Futures, the handbook stands as a comprehensive resource shaped by input from individuals with lived experiences of disability and disability advocates. Lisa emphasised the handbook's practical utility in newsrooms, providing clear guidelines to counter prevailing biases and misconceptions in media representations of disability. Faith underscored the importance of inclusive language and perspectives in journalistic practices, urging newsrooms to adopt these principles to foster a more inclusive media landscape. The handbook's development process and its potential impact in reshaping media narratives were central to their discussion, reflecting a collective effort to promote greater understanding and sensitivity towards disability in journalism.

The addition of a marketing and advertising section within the Disability Reporting Handbook represents a pivotal enhancement aimed at extending its influence beyond traditional journalism. Led by Lisa Cox and designed by Jo Kek-Pamenter, this chapter addresses a crucial void by embedding disability perspectives into media and communication strategies. It equips journalists, advertising professionals, government entities, businesses, and individuals alike with the tools needed to communicate inclusively. By furnishing practical guidance on language use and sensitivity, this section empowers stakeholders to authentically engage with the diverse experiences within the disability community, thereby catalysing significant social change and nurturing a more inclusive media environment.

Download a copy: https://www.mediadiversityaustralia.org/disability-reporting-handbook/

THE FUTURE

Katie Ellis warned against the pitfalls of "inspiration porn," advocating for normalised, diverse representation of the disability community. The panel called for increased visibility and representation to drive social change and create inclusive media landscapes.

The roundtable’s rich discussion, led by the the passionate moderation by Monique, showcased the transformative power of inclusive dialogue and the necessity of dignified media representation.

ACKNOWLEDGEMENT

The Inclusive Futures team would like to thank our hosts, the International Communications Association (ICA), Professor Kuansong Victor Zhuang, Professor Katie Ellis and Professor Gerard Goggin organisers for inviting us to participate in this impactful event.

#InclusiveFutures #DisabilityRepresentation #MediaMatters #ICAPreconference2024 #InclusiveDialogue #DisabilityInMedia

Lisa Cox together with Sara Shams; Pallav Pant; Professor Kuansong Victor Zhuang and Professor Katie Ellis; Professor Gerard Goggin.