Category Elizabeth Kendall   Show all

• Inclusive Futures: Celebrating Cultural Wisdom and FASD Innovations with Aunty Lauraine Barlow, Cultural Steward and Research Advisor

  

  Aunty Lauraine Barlow presents the FASD team with a very special painting 'ngabi wugu gabar' (many working arms). Pictured L-R: Prof. Dianne Shanley, Dr. Erinn Hawkins, Dr. Wei Liu, Aunty Lauraine Barlow, Dr. Leda Barnett and Prof. Elizabeth Kendall.

  This week, the Inclusive Futures: Reimagining Disability team welcomed Aunty Lauraine Barlow, Cultural Steward and Research Advisor to an afternoon tea in her honour, along with the amazing team of Fetal Alcohol Spectrum Disorder (FASD) researchers, led by Professor Dianne Shanley.

  The team, including Prof. Elizabeth Kendal, Director of Inclusive Futures: Reimagining Disability, together with Prof. Dianne Shanley, Dr. Leda Barnett, Dr. Wei Liu and Dr. Erinn Hawkins had a lovely afternoon with Aunty Lauraine, who presented us with a very special painting that represents inclusive futures.
  
  The FASD team have been working on a groundbreaking, no barriers new healthcare model – The Yapatjarrathati Projects. Find out more here: https://www.griffith.edu.au/research/impact/yapatjarrathati-projects

  
  

  Artist and Cultural Steward Aunty Lauraine Barlow

  ABOUT THE ARTIST

  Aunty Lauraine Barlow is a descendant of Mandingalpa Clan, Yidiny tribe and Rimanggudinhma Clan, Lama Lama tribe in North Queensland. Her Aboriginal name is Jana-n Mandingalbay / Jigiddirri Jigiddirri, which means “standout willy wagtail”. Recently, she was honoured with a third name, Buligud, which means Grandmother.

  Aunty Lauraine has experience of chronic illness and disability both personally and in her family members. She has always participated in research, but as more than a ‘subject’ of research. She is a community researcher who takes control of the way in which research is conducted so it remains respectful of her people and the land of her ancestors.

  She promotes the use of art as a medium for sharing healing stories. She is a healer herself, and has completed her qualifications as a Health Worker, a telephone counsellor, a community health promotion consultant and peer leader of self-management courses. She has helped hundreds of Indigenous women with illnesses and disabilities to regain their strength and culture.

  Aunty Lauraine has a long history with Griffith University, having first advised on a research project in 2003. Since that time, she has continued to support research projects and ensure that proper protocols are followed.

  Pictured L-R: Prof. Dr. Leda Barnett, Prof. Elizabeth Kendall, Aunty Lauraine Barlow, Dianne Shanley, Dr. Erinn Hawkins, and Dr. Wei Liu.

  ARTIST STATEMENT

  ngabi wugu gabar (Many working arms)
  
  Pronounced ngaa-bee woo-goo kubb-a from Yidinji Language
  
  This painting represents the research at Griffith Inclusive Futures and was painted to celebrate the commitment of the program to improving the lives of First Nations (and all Australian) people with disability.
  
  The four handprints mean ownership by energetic, clever and confident individuals with leadership skills who are dedicated to advancing knowledge. They signify story telling, gathering of stories and keeping them safe.

  The Ocyopus has eight arms that symbolise movement and pathways of energy.

  Each Octopus arm works independently of each other but also together. All researchers are walking and journeying together on the one path.

  The circles each consist of seven women and men all sitting together to reach positive solutions. They are great communicators, laying down weapons and sharing work tools. The circles represent the completeness that is reached through collaboration and agreement.

  The footprints travel in an anti-clockwise direction which means a place for rethinking, re-working ideas, revisiting, and recycling solutions.

  The octopus is an intelligent being that shines in all forms of thoughts, ideas, and dreams. It denotes authority, self-confidence, inner-strength, inner wisdom, and social status.

  The Octopus is a positive thinker, sincere, understanding, and spiritual. It has three hearts (all 3 are used for swimming but only 2 used for walking) meaning the Octopus has great love for humanity and desire for peace.
  
  The red tracks with white corals and foam represent the impact the Octopus has as it swims and walks around in the ocean. It leaves a foamy trail, especially when swimming fast.

  The single red mark is a mermaid’s purse which represents deep waters. Deep waters that are not yet fully understood attract the attention of this inquisitive being.

  
  

  Professor Elizabeth Kendall (Director - Inclusive Futures: Reimagining Disability) and Aunty Lauraine Barlow (Cultural Steward and Research Advisor.

  CONTACT

  Aunty Lauraine J. Barlow JP (Qual)
  Jana-n Mandingalbay / Jigiddirri Jigiddirri Bulugud

  Elder, Aboriginal Steward and Knowledge Bearer
  Cultural Weaver, Story and Cultural Space Feeler
  
  +61 0488 121 686 | gnullbin@yahoo.com.au

  or email inclusivefutures@griffith.edu.au

• Humanising Healthcare: A Futurist's Perspective on Disability and Pharmacies

  

  A montage of images from APP 2024 including Morris Misel, Prof. Elizabeth Kendall, Julia Robertson, Julie Rogan and Dr. Chris Edwards.

  Last Friday at APP 2024 the Australian Pharmacy Professional's Annual Conference on the Gold Coast, Morris Misel had the privilege of chairing a powerful panel discussion on disability and community pharmacists.
  
  These conversations are critical to shaping the future of healthcare, and this session was a shining example of why.
  
  The panel, drawn from Griffith University's Inclusive Futures: Reimagining Disability community (a network of 500+ incredible individuals with lived experience of disability), featured Dr Chris Edwards, Julia Robertson and Julie Rogan each sharing their unique perspective on navigating community pharmacies.
  
  From sensory overload for individuals with autism to medication delays due to unnecessary concerns, their stories highlighted the importance of human connection in healthcare.
  
  When pharmacists took the time to understand their needs, the experience was positive. When communication faltered, frustration arose.
  
  The best part? The audience, both in-person and online, fostered a fantastic atmosphere of acceptance. Pharmacists felt comfortable asking insightful questions and the panellists were thrilled to share their experiences.
  
  Honest dialogue, where everyone is heard without fear of offense, is the cornerstone of progress.
  
  Here's the exciting part: APP offered practical solutions!
  
  From government programs allowing for more pharmacist-patient interaction to readily implemented processes, there are tangible steps we can take today.
  
  The Takeaway: Disability Impacts Everyone
  
  Disability affects 1 in 4 Australians, if you include those with chronic pain, as well as carers & families the figure jumps to 7 in 10 Australians are directly impacted by disability.
  
  Imagine if any other business ignored such a significant, loyal customer base?
  
  Pharmacies have a golden opportunity to improve access and care for a vast demographic.
  
  By listening to the voices of lived experience, we will create a more inclusive and effective healthcare system for all.
  
  Ready to Start a Conversation?
  
  If you're looking to integrate lived experience disability voices into your industry or business, we can help! Whether it's a chat, panel discussion, keynote address, or strategy workshop, let's create impactful conversations that pave the way for a more inclusive future.
  
  A huge thank you to #APP24 for providing a platform for this crucial conversation, and to Dr. Chris Edwards, Julia Robertson, and Julie Rogan for bravely sharing their stories and insights. Your openness paves the way for a more understanding and inclusive healthcare system!

  Video and Transcript
  If you missed this exciting Guild APP panel session, view the video recording on our Inclusive Futures YouTube Account here. A written transcript is also available, please contact j.kek-pamenter@griffith.edu.au or inclusivefutures@griffith.edu.au for an accessible copy.

• The Conversation: Travellers with disability often face discrimination. What should change and how to complain?

  

  New Publication Alert:
  
  The Conversation: Travellers with disability often face discrimination. What should change and how to complain?

  Authors: Kelsey Chapman, Professor Elizabeth Kendall and Lisa Stafford
  
  Published: 24 January 2024
  
  Former Disability Discrimination Commissioner Graeme Innes AM settled a dispute with Adelaide Airport over denied access to a body scanner with his assistance dog. His experience reflects challenges faced by Australia's 4.4 million people with disability in air travel.

  The Australian Human Rights Commission received over 100 disability discrimination complaints against airlines from 2016-2022, revealing systemic ableism. Freedom of movement, a UN right, is denied through discriminatory practices, damaged mobility equipment, and offensive situations. Urgent reform is needed, with recommendations for specific air travel standards and independent oversight.
  
  Collaboration between governments and the aviation industry can ensure inclusive air travel, aligning with equity principles and promoting diversity. Complaints and legal support are available avenues, but proactive measures like the Disability Rights Act are crucial for lasting change. Everyone deserves dignified and autonomous travel experiences.

  Read ‘The Conversation’ article in full on the link below:

  https://theconversation.com/travellers-with-disability-often-face-discrimination-what-should-change-and-how-to-complain-221740

  Visit our Inclusive Futures Hub:
  https://inclusivefutures.griffith.edu.au
  
  Contact:
  Kelsey Chapman

  k.chapman@griffith.edu.au

  
  

  

• Towards Inclusive Digital Futures

  

  Ethical Data and AI-Enabled Decisions in the Context of Accessibility and Urban Living, hosted by Professor Dian Tjondronegoro

  On Thursday, 9 November, Professor Dian Tjondronegoro (“LIVE” theme leader) and Professor Elizabeth Kendall (Director) of Inclusive Futures: Reimagining Disability hosted Toward Inclusive Digital Futures, a bilateral workshop to foster dialogue to advance collaboration between Australia and Indonesia in the area of ethical AI and inclusive urban environments.

  We heard from keynote speaker Dr Bahtia ("Bobby") Rifai (Economic Researcher for the Indonesian National Research and Innovation Agency (BRIN)) about the roles of and interplay between different actors generating, collecting and using data, in complex regulatory and institutional environments. Overlaid on this are the social inequalities that lead to people being underrepresented or having poor access to the digital world.

  

  A panel moderated by Dr Amber Marshall (Griffith), and including Liz Antoine (Microsoft), Dr Nagesh Shukla (QUT), Tim Mitchell (RACQ) and Fiona Gaske (RDA) discussed data, AI and digital inclusion and ethics in different contexts including transport, supply chains, regions and education.

  We broke out into groups for in-depth discussions exploring issues including data transparency and governance, smart and accessible cities, and opportunities for bilateral collaboration.

  It was a very thought-provoking session, and we are looking forward to progressing ideas in future research collaboration.

  

  For more information please contact us at:

  Inclusive Futures: Reimagining Disability
  inclusivefutures@griffith.edu.au

  Visit our Inclusive Futures Hub to find out more about our research:

  https://inclusivefutures.griffith.edu.au

• Change 2023 Conference: Nothing About Us Without Us

  

  

  
  

  CHANGE 2023 CONFERENCE

  Empower, Enable, Enact

  The Inclusive Futures: Reimagining Disability (IFRD) team had the pleasure to lead a session at Change 2023 last Friday, 20 October at Griffith University, Southbank Campus.

  Change 2023 is an annual 2-day conference in Brisbane, Queensland hosted by Social Marketing @ Griffith, especially for practitioners, professionals, researchers and experts with an interest in making change happen.

  In our session - Nothing About Us Without Us – Kelsey Chapman (IFRD Engagement Manager and PhD Candidate) lead a Q&A panel discussion with Professor Elizabeth Kendall (Director), Kevin Cocks, Brad Kinsela and Jim Hogan.

  In this impactful discussion, they candidly shared their experiences as disability advocates and outlined challenges they have experienced in their decades of fighting for inclusion.

  To find out more about Inclusive Futures and the research we do, visit our website:

  https://www.griffith.edu.au/research/inclusive-futures-reimagining-disability